Real-world Data for Clinical Evidence Generation in Oncology.
Sean Khozin, Gideon M Blumenthal, Richard Pazdur
https://pubmed.ncbi.nlm.nih.gov/29059439Actively Recruiting
Led by Helse Stavanger HF · Updated on 2022-10-20
150
Participants Needed
1
Research Sites
208 weeks
Total Duration
Researchers are investigating fatigue in breast cancer survivors through an observational study called REBECCA-1. This study focuses on using real-world data collected via electronic patient records, digital registers, smartphones, and wearable devices to better understand cancer-related fatigue (CRF). CRF is a common, persistent side effect after breast cancer treatment, affecting physical, mental, and emotional well-being. The study also explores immunological biomarkers that may be linked to fatigue development. Participants include breast cancer patients who have completed treatment and healthy women as controls. Breast cancer patients are grouped based on fatigue severity, measured by a fatigue visual analogue scale (fVAS). Participants will use a REBECCA smartwatch, smartphone app, and PC plug-in to collect objective data on activity, sleep, and social behavior over 12 months. Biological samples and patient-reported outcome measures (PROMs) will be collected at diagnosis and at multiple follow-up points up to 18 months. During the study, participants will complete questionnaires about quality of life, lifestyle, and symptoms, while their biological samples will be analyzed for biomarkers related to fatigue. Data from smart devices will track physical activity and movement patterns daily. Researchers will compare subjective reports, objective monitoring, and biomarker data to gain insights into fatigue's impact. The study aims to improve understanding of fatigue in breast cancer survivors and enhance patient monitoring using innovative digital tools over an 18-month period.
CONDITIONS
Monitoring of Chronic Conditions in Breast Cancer
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Complete this quick 3-step screening to check your eligibility
Duration - 2 to 4 weeks
Participants are screened for eligibility to participate in the trial.
1 visit (in-person)
Duration - At diagnosis (baseline)
Participants undergo initial assessments including patient-reported outcome measures and collection of biological samples at diagnosis before treatment begins.
1 visit (in-person)
Duration - At 6 months after diagnosis and treatment
After completing cancer treatment, participants are assessed for fatigue levels and assigned to either the Cancer Related Fatigue arm, Mild Cancer Related Fatigue arm, or healthy control group.
1 visit (in-person)
Duration - 12 months (from month 6 to month 18 after diagnosis)
Participants wear a smartwatch and use mobile and computer apps to continuously collect real-world data related to quality of life, activity, and symptoms over 12 months. Patient-reported outcome measures and biological samples are collected at 6, 12, and 18 months after diagnosis.
Visits at 6, 12, and 18 months post-diagnosis with continuous data collection via devices
Total: 1 location
1
Helse Stavanger HF
Stavanger, Norway, 4068
Actively Recruiting
T
Tone Hoel Lende, PhD
H
Håvard Søiland, PhD
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
3
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