Actively Recruiting
National Registry for VEXAS Syndrome with Biomaterial Collection to Study Disease and Treatment
Led by Technische Universität Dresden · Updated on 2026-05-15
500
Participants Needed
17
Research Sites
52 weeks
Total Duration
AI-Summary
What this Trial Is About
This research aims to rapidly gather real-world information about VEXAS syndrome, focusing on its epidemiology, treatments, and disease progression during standard medical care. It also collects biomaterials to study links between genetic makeup and symptoms, to find the best treatment plans, and to identify key diagnostic features and biomarkers. The study is observational, involving patients with confirmed or suspected VEXAS syndrome aged 18 or older who provide consent. There are no assigned treatments or interventions as it records information during routine clinical practice. The registry collects data and biospecimens over a period of up to five years to support detailed analysis. Participants will provide clinical data, treatment histories, and quality of life information through questionnaires and laboratory tests. Researchers will monitor disease manifestations, treatments, and clinical outcomes, as well as collect biosamples for translational research. The study follows participants for up to five years to better understand VEXAS syndrome and its management.
CONDITIONS
Brief Title
Multicenter, Interdisciplinary National VEXAS Registry With Accompanying Biomaterial Collection
Research Team
K
Katja Sockel, Dr. med.
K
Katharina Goetze, Prof.
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