Global Patient Registry for Adults Living with Myasthenia Gravis Observational Study by the Myasthenia Gravis Foundation of America

What this Trial Is About

Researchers are conducting an observational study to learn about the experiences of people living with Myasthenia Gravis MG in the United States. The study aims to understand how and when MG is diagnosed, the common symptoms, treatments used, and the impact of MG on daily activities, employment, and quality of life. It also explores experiences related to disease flare-ups, hospitalizations, and access to healthcare. Participants with MG will join a patient-reported registry where they provide information via surveys. After enrolling through an initial survey, participants are invited to complete update surveys twice a year to share ongoing information about their condition and experiences. Throughout the study, participants will answer surveys that include questions about their diagnosis, symptoms, treatments, and life impacts. The main measurement is confirming the diagnosis of MG at enrollment. The study is led by the Myasthenia Gravis Foundation of America and follows participants over time to gather detailed patient-reported data about living with MG.

Myasthenia Gravis Foundation of America Global MG Patient Registry