Actively Recruiting
Myasthenia Gravis Foundation of America Global MG Patient Registry
Led by Myasthenia Gravis Foundation of America · Updated on 2024-09-27
3800
Participants Needed
1
Research Sites
831 weeks
Total Duration
On this page
Sponsors
M
Myasthenia Gravis Foundation of America
Lead Sponsor
A
Alira Health
Collaborating Sponsor
AI-Summary
What this Trial Is About
The goal of this observational study is to learn about the experiences of people living with Myasthenia Gravis (MG) in the United States. The main questions it aims to answer are: * How and when are people with MG diagnosed? * What are the most common symptoms associated with MG? * What treatments are being used to treat MG? * What are the impacts of MG on activities of daily living, employment and quality of life? * What are the experiences with exacerbation, hospitalization and healthcare access for people with MG? Participants will answer a survey to enroll in the study, and be invited to fill out an update survey twice a year.
CONDITIONS
Official Title
Myasthenia Gravis Foundation of America Global MG Patient Registry
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Age over 18
- Positive diagnosis of Myasthenia Gravis
You will not qualify if you...
- Age under 18
- Misdiagnosed with Myasthenia Gravis
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
Myasthenia Gravis Foundation of America
Westborough, Massachusetts, United States, 01581
Actively Recruiting
Research Team
N
National Director, Patient Registry
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
1
Not the Right Trial for You?
Explore thousands of other clinical trials that might be a better match.
Sign up to get personalized trial recommendations delivered to your inbox.
Already have an account? Log in here