Actively Recruiting
Myasthenia Gravis Foundation of America Global MG Patient Registry
Led by Myasthenia Gravis Foundation of America · Updated on 2024-09-27
3800
Participants Needed
1
Research Sites
N/A
Total Duration
On this page
Sponsors
M
Myasthenia Gravis Foundation of America
Lead Sponsor
A
Alira Health
Collaborating Sponsor
AI-Summary
What this Trial Is About
Researchers are conducting an observational study to learn about the experiences of people living with Myasthenia Gravis (MG) in the United States. The study aims to understand how and when MG is diagnosed, the common symptoms, treatments used, and the impact of MG on daily activities, employment, and quality of life. It also explores experiences related to disease flare-ups, hospitalizations, and access to healthcare. Participants with MG will join a patient-reported registry where they provide information via surveys. After enrolling through an initial survey, participants are invited to complete update surveys twice a year to share ongoing information about their condition and experiences. Throughout the study, participants will answer surveys that include questions about their diagnosis, symptoms, treatments, and life impacts. The main measurement is confirming the diagnosis of MG at enrollment. The study is led by the Myasthenia Gravis Foundation of America and follows participants over time to gather detailed patient-reported data about living with MG.
CONDITIONS
Brief Title
Myasthenia Gravis Foundation of America Global MG Patient Registry
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Age over 18 years
- Positive diagnosis of Myasthenia Gravis
You will not qualify if you...
- Age under 18 years
- Misdiagnosed with Myasthenia Gravis
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Your Study Journey
Duration - 2 to 4 weeks
Participants are screened for eligibility to participate in the trial.
Duration - Up to study completion (September 2029)
Participants provide ongoing patient-reported information about their Myasthenia Gravis condition over time.
Trial Site Locations
Total: 1 location
1
Myasthenia Gravis Foundation of America
Westborough, Massachusetts, United States, 01581
Actively Recruiting
Research Team
N
National Director, Patient Registry
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
1
Similar Trials
Frequently Asked Questions
Have more questions? Get in touch with our team for quick support
Not the Right Trial for You?
Explore thousands of other clinical trials that might be a better match.
Sign up to get personalized trial recommendations delivered to your inbox.
Already have an account? Log in here