Actively Recruiting
National Lymphangioleiomyomatosis Registry, France
Led by Vincent COTTIN · Updated on 2025-03-13
200
Participants Needed
1
Research Sites
778 weeks
Total Duration
On this page
Sponsors
V
Vincent COTTIN
Lead Sponsor
H
Hospices Civils de Lyon
Collaborating Sponsor
AI-Summary
What this Trial Is About
RE-LAM-CE is a registry of lymphangioleiomyomatosis cases in France. its aim is to determine the incidence and prevalence of lymphangioleiomyomatosis in France, including demographic information and information concerning the timing and modalities of diagnosis. Based on the registry, we will set up a prospective cohort of patients. The database will include detailed medical information, particularly regarding progression of the respiratory function.
CONDITIONS
Official Title
National Lymphangioleiomyomatosis Registry, France
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Patients with sporadic lymphangioleiomyomatosis or associated with Tuberous sclerosis
- Patients diagnosed, hospitalized, or seen in consultation since 01/01/2008
You will not qualify if you...
History of severe allergic reactions to study medication Currently pregnant or breastfeeding Recent participation in another clinical trial within the last 30 days Presence of uncontrolled medical conditions that could affect safety
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
Hôpital Louis Pradel
Lyon, France, 69677
Actively Recruiting
Research Team
V
Vincent Cottin, MD
CONTACT
R
Raphaële Guelminger, CRA
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
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