Actively Recruiting

All Genders
NCT05289245

A National Registry on Chinese Patients With Cystic Fibrosis

Led by Peking Union Medical College Hospital · Updated on 2022-03-21

200

Participants Needed

1

Research Sites

548 weeks

Total Duration

On this page

AI-Summary

What this Trial Is About

Cystic fibrosis (CF) is a rare autosomal recessive disease involving multiple organs, especially the lungs and digestive organs. It is most commonly seen in Caucasians. Only a few Chinese CF patients have been described in literature, taking into account the large population of China. The main objectives of this study are to accurately evaluate the prevalence of CF, the status of disease, the diagnosis and treatment, the quality of care, and the health related outcomes in China.

CONDITIONS

Official Title

A National Registry on Chinese Patients With Cystic Fibrosis

Who Can Participate

All Genders

Eligibility Criteria

Eligible

You may qualify if you...

  • Fulfilled WHO clinical diagnostic criteria for CF
  • Was in a stable phase with no respiratory infections for nearly 4 weeks
  • Subjects (or their guardians) signed informed consent
Not Eligible

You will not qualify if you...

  • Patients with other bronchiectasis who did not meet the inclusion criteria
  • Those with severe cardiac or renal disease

AI-Screening

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Trial Site Locations

Total: 1 location

1

Peking Union Medical College Hospital

Beijing, Beijing Municipality, China

Actively Recruiting

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Research Team

X

Xinlun Tian, M.D.

CONTACT

How is the study designed?

Study Type

OBSERVATIONAL

Masking

N/A

Allocation

N/A

Model

N/A

Primary Purpose

N/A

Number of Arms

0

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