Actively Recruiting

Age: 18Years - 75Years
All Genders
NCT04314323

National Registry of IRPF in China

Led by Peking Union Medical College Hospital · Updated on 2020-03-19

500

Participants Needed

1

Research Sites

519 weeks

Total Duration

On this page

AI-Summary

What this Trial Is About

The aim of this study is to establish a nation-wide cohort study of idiopathic retroperitoneal fibrosis (IRPF) in China. Methods: All the patients fulfilling diagnostic criteria of IRPF would be enrolled from multi-centers around China. A online database system has been established. Endpoints: The primary endpoint is to investigate the clinical manifestations of Chinese IRPF patients; the secondary endpoints including the demographic features,laboratory characteristics, immunological tests, imaging and pathological features, in addition, the treatment and prognosis of the disease.

CONDITIONS

Official Title

National Registry of IRPF in China

Who Can Participate

Age: 18Years - 75Years
All Genders

Eligibility Criteria

Eligible

You may qualify if you...

  • Conforming to the diagnostic criteria of idiopathic retroperitoneal fibrosis (IRPF)
  • Imaging shows a retroperitoneal mass surrounding the abdominal aorta and iliac arteries with encasement of ureters and/or organ dysfunction
  • No disease progression after standard glucocorticoid treatment
  • Histopathological findings show fibrous tissue with chronic inflammation (lymphocytes, plasma cells, macrophages) or if no biopsy, imaging and clinical signs must be present
  • Newly diagnosed IRPF patients aged 18 to 75 years
Not Eligible

You will not qualify if you...

  • Diagnosis of other autoimmune diseases
  • Presence of malignant disease
  • Secondary retroperitoneal fibrosis related to drugs, infections, malignancies, Erdheim-Chester disease, or IgG4-related disease

AI-Screening

AI-Powered Screening

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Trial Site Locations

Total: 1 location

1

Peking Union Medical College Hospital

Beijing, Beijing Municipality, China, 100032

Actively Recruiting

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Research Team

Y

Yunyun Fei

CONTACT

W

Wen Zhang

CONTACT

How is the study designed?

Study Type

OBSERVATIONAL

Masking

N/A

Allocation

N/A

Model

N/A

Primary Purpose

N/A

Number of Arms

0

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