Actively Recruiting
National Registry of Rare Kidney Diseases
Led by UK Kidney Association ยท Updated on 2023-10-04
35000
Participants Needed
1
Research Sites
1573 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
The goal of this National Registry is to is to collect information from patients with rare kidney diseases, so that it that can be used for research. The purpose of this research is to: * Develop Clinical Guidelines for specific rare kidney diseases. These are written recommendations on how to diagnose and treat a medical condition. * Audit treatments and outcomes. An audit makes checks to see if what should be done is being done and asks if it could be done better. * Further the development of future treatments. Participants will be invited to participate on clinical trials and other studies. The registry has the capacity to feedback relevant information to patients and in conjunction with Patient Knows Best (Home - Patients Know Best), allows patients to provide information themselves, including their own reported quality of life and outcome measures.
CONDITIONS
Official Title
National Registry of Rare Kidney Diseases
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Diagnosis of a rare kidney disease
- Patients of any age, including children and adults
- Eligibility requirements vary depending on the specific rare kidney disease group
- Consent provided through a UK NHS hospital for international participants
You will not qualify if you...
- Not having a rare kidney disease
- Not consenting to share clinical data
- Not being under care or consented through a UK NHS hospital for international participants
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
Zoe Plummer
Bristol, South West, United Kingdom, BS34 7RR
Actively Recruiting
Research Team
Z
Zoe Plummer
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
31
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