Actively Recruiting

Age: 16Years +
All Genders
NCT05653544

Natural History in Primary Mitochondrial Myopathies

Led by Cristina Domínguez González · Updated on 2025-09-16

150

Participants Needed

1

Research Sites

208 weeks

Total Duration

On this page

AI-Summary

What this Trial Is About

This is a longitudinal study in a cohort of patients with a genetic diagnosis of Primary Mitochondrial Myopathy to describe the natural history of the disease and identify clinical, biochemical, molecular, and radiological variables that allow evaluation of the severity and progression of the disease and may be useful in future clinical trials.

CONDITIONS

Official Title

Natural History in Primary Mitochondrial Myopathies

Who Can Participate

Age: 16Years +
All Genders

Eligibility Criteria

Eligible

You may qualify if you...

  • Muscle symptoms such as exercise intolerance, fatigue, muscle pain, recurrent rhabdomyolysis, chronic progressive external ophthalmoplegia, or muscular weakness
  • Presence of primary mitochondrial DNA mutation or pathogenic mutations in nuclear DNA, especially in genes related to mitochondrial DNA maintenance such as TK2, POLG, TWNK, and RRM2B
Not Eligible

You will not qualify if you...

  • None

AI-Screening

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Trial Site Locations

Total: 1 location

1

Hospital Universitario 12 Octubre

Madrid, Madrid, Spain, 28041

Actively Recruiting

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Research Team

C

Cristina Domínguez González, MD, PhD

CONTACT

How is the study designed?

Study Type

OBSERVATIONAL

Masking

N/A

Allocation

N/A

Model

N/A

Primary Purpose

N/A

Number of Arms

1

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