Actively Recruiting

Age: 2Years - 90Years
All Genders
NCT00081523

Natural History of Sickle Cell Disease

Led by National Heart, Lung, and Blood Institute (NHLBI) · Updated on 2026-05-07

3500

Participants Needed

3

Research Sites

N/A

Total Duration

On this page

AI-Summary

What this Trial Is About

This study is not a treatment protocol and no experimental treatments are involved. Study participants may be seen as needed for clinical, translational and basic research studies, or as medically indicated. Subjects will receive their general medical care outside the NIH and will be seen at our clinic or at CNHS with varying frequency. Subjects may be seen for multiple visits. Subjects may be asked to return for additional testing as needed. Clinical care for patients with sickle cell disease will be provided as appropriate through the Sickle Cell Clinic and the inpatient clinical center....

CONDITIONS

Official Title

Natural History of Sickle Cell Disease

Who Can Participate

Age: 2Years - 90Years
All Genders

Eligibility Criteria

Eligible

You may qualify if you...

  • Individuals with known or suspected sickle cell disease
  • 2 years of age and older
  • Willing to provide informed consent or have appropriate consent from a parent or legal guardian
  • Patients seen at sickle cell outpatient clinics at CNHS or NIH
Not Eligible

You will not qualify if you...

  • Unable or unwilling to provide informed consent or assent
  • Patients less than 2 years of age

AI-Screening

AI-Powered Screening

Complete this quick 3-step screening to check your eligibility

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Trial Site Locations

Total: 3 locations

1

Childrens National Health Center

Washington D.C., District of Columbia, United States, 20010

Actively Recruiting

2

Suburban Hospital

Bethesda, Maryland, United States, 20814

Completed

3

National Institutes of Health Clinical Center

Bethesda, Maryland, United States, 20892

Actively Recruiting

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Research Team

N

Nancy A Asomaning

CONTACT

How is the study designed?

Study Type

OBSERVATIONAL

Masking

N/A

Allocation

N/A

Model

N/A

Primary Purpose

N/A

Number of Arms

1

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Natural History of Sickle Cell Disease | DecenTrialz