Actively Recruiting
Natural History Study of Leukoencephalopathy With Brainstem and Spinal Cord Involvement and Lactate Elevation (LBSL)
Led by Hugo W. Moser Research Institute at Kennedy Krieger, Inc. · Updated on 2024-07-03
100
Participants Needed
1
Research Sites
578 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
In this study, we will conduct retrospective chart and imaging reviews and prospective longitudinal virtual assessments of individuals with LBSL.
CONDITIONS
Official Title
Natural History Study of Leukoencephalopathy With Brainstem and Spinal Cord Involvement and Lactate Elevation (LBSL)
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Confirmed DARS2 mutation through genetic analysis
- Ability of the caregiver or participant to speak and understand English at an 8th-grade level
You will not qualify if you...
- Prisoners
- Non-viable neonates
- Pregnant women
- Adults lacking the capacity to consent
- Non-English speakers
- Children in foster care or wards of the state
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
Hugo Moser Center for Leukodystrophies
Baltimore, Maryland, United States, 21205
Actively Recruiting
Research Team
A
Aditii Makwana, MS
CONTACT
J
Jordan Goodman, MS
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
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