Self-Reported Data and Physician-Reported Data in Patients With Eosinophilic Granulomatosis With Polyangiitis: Comparative Analysis.
Irena Doubelt, Jason M Springer, Tanaz A Kermani...
https://pubmed.ncbi.nlm.nih.gov/35612893/Actively Recruiting
Led by University of Pennsylvania · Updated on 2026-01-22
1000
Participants Needed
14
Research Sites
N/A
Total Duration
Researchers are investigating the genetic factors that may increase the risk of developing vasculitis, a group of serious diseases involving inflammation of blood vessels. This study focuses on six specific types of vasculitis, chosen to represent a range of vessel sizes and unmet medical needs. The goal is to better understand the causes of these rare diseases and generate new ideas for diagnostic tests and treatments. The study involves a one-time collection of clinical data and DNA samples from participants with one of the six vasculitis types. This approach helps include patients who cannot frequently visit study centers, especially those with rarer forms of vasculitis or elderly patients. There are no drug treatments or interventions involved, as this is an observational genetic research study. Participants provide information and a DNA sample during a single visit. Researchers will evaluate this clinical data and linked DNA specimens over one year to identify genetic associations with vasculitis. Throughout the study, no additional treatments or follow-up visits are required. The total participation time is limited to this one-time collection and subsequent analysis period.
CONDITIONS
One-Time DNA Study for Vasculitis
C
Carol McAlear, MA
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University of Pennsylvania
Lead Sponsor
National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
Collaborating Sponsor
You may qualify if you...
You will not qualify if you...
Duration - 2 to 4 weeks
Participants are screened for eligibility to participate in the trial.
1 visit (in-person)
Duration - One-time
Participants provide clinical data and blood samples for DNA collection to support genetic research on vasculitis.
1 visit (in-person)
Duration - 1 year
Participants' clinical data and DNA specimens are evaluated over one year to support genetic association studies.
No additional visits required
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
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Irena Doubelt, Jason M Springer, Tanaz A Kermani...
https://pubmed.ncbi.nlm.nih.gov/35612893/University of Pennsylvania
Lead Sponsor
National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
Collaborating Sponsor