Actively Recruiting
Study of a Palliative Care Video to Improve Knowledge and Attitudes in Adults with Multiple Sclerosis or Related Conditions
Led by Hunter College of City University of New York · Updated on 2026-04-22
50
Participants Needed
2
Research Sites
4 weeks
Total Duration
AI-Summary
What this Trial Is About
Researchers are evaluating the impact of two different palliative care approaches on knowledge, attitudes, and decision-making among adults aged 18 to 65 with neuroinflammatory diseases such as Multiple Sclerosis MS, Neuromyelitis Optica Spectrum Disorder NMOSD, or anti-MOG. The study compares a video decision aid model to standard palliative care written information. The aim is to explore patients preferences for care goals, decisional conflict, knowledge, and preparation for making healthcare decisions, with assessments at baseline and after three months. Participants are randomly assigned to either view a 10-minute palliative care video or receive written informational sheets about palliative care conversations and advance care planning. The video includes empathic messaging, explanations of care goals using the Physician Orders for Life Sustaining Treatment POLST framework, and visual aids describing life-prolonging, limitedblended, and comfort care options. Both groups complete demographic forms and pre- and post-tests at baseline and after three months. The video group can review the video as needed using iPads, and an advance care planning facilitator guide supports consistent delivery of the intervention. During the study, participants will report their goals-of-care preferences, cardiopulmonary resuscitation CPR and ventilatory support choices at several timepoints baseline, immediately after the intervention or control material, and after three months via phone follow-up. Researchers will assess treatment preferences, knowledge about palliative care, decisional conflict, and preparation for decision making. They will also explore changes in preferences and documentation of palliative care conversations over time. The total participant involvement includes initial visits and a three-month follow-up assessment.
CONDITIONS
Brief Title
A Palliative Care Model Impact on Knowledge and Attitudes
Research Team
A
Aliza Ben-Zacharia, PhD
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