Actively Recruiting

Age: 18Years +
All Genders
NCT05871996

Palliative Care and Oncology Survey on Terminology

Led by Our Lady's Hospice and Care Services · Updated on 2025-06-27

1532

Participants Needed

3

Research Sites

104 weeks

Total Duration

On this page

Sponsors

O

Our Lady's Hospice and Care Services

Lead Sponsor

R

Royal Surrey County Hospital NHS Foundation Trust

Collaborating Sponsor

AI-Summary

What this Trial Is About

The term '"cancer survivors" is widely used but has different definitions. One definition describes "cancer survivors" as individuals from the time of diagnosis throughout their lives, which includes people living with cancer and people free of cancer. The views of some groups included in this definition of "cancer survivors" have rarely been assessed, including those with cancer on anticancer treatment and those known to palliative care. How they view these terms could have important implications for how they receive care services. This is an international multi-centre observational study. It aims to recruit patients internationally across Ireland and the United Kingdom. Participants known to cancer and/or palliative care hospital or hospice services as inpatients, outpatients or community patients will be asked to complete a survey during a one-off visit which should last under 30 minutes. The survey asks a series of questions to determine the perceptions of patients know to cancer and palliative care services about the terminologies used to describe them.

CONDITIONS

Official Title

Palliative Care and Oncology Survey on Terminology

Who Can Participate

Age: 18Years +
All Genders

Eligibility Criteria

Eligible

You may qualify if you...

Group 1: Individuals with a diagnosis of cancer known to palliative care services

Inclusion criteria:

  • Diagnosis of cancer
  • Under the care of palliative care services as an inpatient, outpatient or community patient
  • Age ≥18 years
  • Able to speak / read English (enough to complete questionnaire)

Exclusion criteria:

  • Unable to provide consent
  • Unable to complete questionnaire

Group 2: Individuals with a diagnosis of cancer receiving anti-cancer treatment known to oncology services

Inclusion criteria:

  • Diagnosis of cancer
  • Under the care of oncology services and currently receiving an anticancer treatment regimen of any kind
  • Age ≥18 years
  • Able to speak / read English (enough to complete questionnaire)

Exclusion criteria:

  • Unable to provide consent
  • Unable to complete questionnaire
Not Eligible

You will not qualify if you...

History of severe allergic reactions to study medication Currently pregnant or breastfeeding Recent participation in another clinical trial within the last 30 days Presence of uncontrolled medical conditions that could affect safety

AI-Screening

AI-Powered Screening

Complete this quick 3-step screening to check your eligibility

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Trial Site Locations

Total: 3 locations

1

St Vincent's University Hospital

Dublin, County Dublin, Ireland, D04 T6F4

Actively Recruiting

2

Our Lady's Hospice & Care Services

Dublin, Ireland, D6W RY72

Actively Recruiting

3

Royal Surrey County Hospital

Guildford, Surrey, United Kingdom, GU2 7XX

Not Yet Recruiting

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Research Team

A

Amy GS Taylor, MBChB MRCP

CONTACT

A

Andrew N Davies, MBBS MSc MD

CONTACT

How is the study designed?

Study Type

OBSERVATIONAL

Masking

N/A

Allocation

N/A

Model

N/A

Primary Purpose

N/A

Number of Arms

2

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