Actively Recruiting
Parkinson's Disease in Asian Americans
Led by Tufts University · Updated on 2024-05-20
430
Participants Needed
1
Research Sites
111 weeks
Total Duration
On this page
Sponsors
T
Tufts University
Lead Sponsor
N
Naheed Esar, Asian Women for Health
Collaborating Sponsor
AI-Summary
What this Trial Is About
The ultimate goal of this project is to use the findings to develop culturally appropriate programs and resources that can be disseminated to key stakeholders to improve access to PD care and increase inclusivity in PD research for Asian Americans. This study will serve as a first step towards developing broader community and patient education programs and active outreach campaigns to increase PD-specific literacy among Asian Americans. The results from this study will elucidate the role that language barriers, cultural perceptions, family influence, and other predisposing, enabling, or need factors have on delaying care for PD among Asian Americans. It will also provide much needed insight on how to improve inclusion of Asian Americans in PD research studies.
CONDITIONS
Official Title
Parkinson's Disease in Asian Americans
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Chinese or Vietnamese ethnicity
- Age 18 years or older
- Diagnosed or presented for Parkinson's Disease care at Tufts Medical Center Movement Disorders Clinic from January 1, 2010 to December 31, 2019
- Asian American person diagnosed with Parkinson's Disease able to participate in interview by phone or Zoom and provide informed consent
- Primary caregivers of Asian American Parkinson's Disease patients aged 18 or older, first-degree family member or spouse, able to participate in interview by phone or Zoom and provide informed consent
- Clinicians aged 18 or older who care for Parkinson's Disease patients
- Key advocates working with the Asian elderly population, employed or volunteering for community organizations, aged 18 or older, able to participate in focus group on Zoom
- Primary care partners of family members with Parkinson's Disease who are Chinese or Vietnamese ethnicity, aged 18 or older
You will not qualify if you...
- Patients diagnosed with juvenile-onset Parkinson's Disease
- Parkinson's Disease patients diagnosed with dementia
- Parkinson's Disease patients taking medication for cognitive impairment such as anti-psychotics, donepezil (Aricept), rivastigmine (Exelon), or galantamine (Razadyne)
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
Tufts University School of Medicine
Boston, Massachusetts, United States, 02111
Actively Recruiting
Research Team
A
Alice Tang, PhD
CONTACT
N
Naheed Esar
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
4
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