Actively Recruiting
Patient Reported Outcomes Burdens and Experiences - Phase 3
Led by McMaster University · Updated on 2025-08-22
1000
Participants Needed
1
Research Sites
521 weeks
Total Duration
On this page
Sponsors
M
McMaster University
Lead Sponsor
P
Patient Outcomes Research Group (PORG)
Collaborating Sponsor
AI-Summary
What this Trial Is About
The PROBE Phase-3 study will collect data on patient reported outcomes, burdens, and experiences in patients living with hemophilia. The investigators will perform comparisons among countries, within country over time, within country against national normative data.
CONDITIONS
Official Title
Patient Reported Outcomes Burdens and Experiences - Phase 3
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Persons living with hemophilia recruited through national patient organizations using membership rosters, social media, and events
- Recruitment methods may vary by country to test best practices
- Potential future inclusion of patients with other chronic conditions
You will not qualify if you...
- Disease severity and age limits (e.g., minimum age of 18) may be applied to narrow the study population
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
McMaster University
Hamilton, Ontario, Canada, L8S4B2
Actively Recruiting
Research Team
M
Mark Skinner
CONTACT
A
Alfonso Iorio
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
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