Actively Recruiting
Patient-Reported Outcomes and Quality of Life in Adult and Pediatric Patients With Nodular Lymphocyte-Predominant Hodgkin Lymphoma (NLPHL)
Led by St. Jude Children's Research Hospital · Updated on 2026-04-02
100
Participants Needed
7
Research Sites
199 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
There is a pressing need to measure patient-reported symptoms in patients of all ages diagnosed with nodular lymphocyte-predominant Hodgkin lymphoma (NLPHL). This study aims to measure longitudinal symptom burden and treatment tolerability utilizing validated patient-reported outcomes (PROs) instruments. Primary Objective: * To develop the data collection infrastructure required to prospectively collect longitudinal electronic patient-reported outcomes (PROs) survey instruments in adult and pediatric patients diagnosed with NLPHL. Secondary Objective: * To examine differences in baseline and longitudinal changes in PROs based on disease characteristics, disease status, and treatment strategies among adult and pediatric patients diagnosed with NLPHL.
CONDITIONS
Official Title
Patient-Reported Outcomes and Quality of Life in Adult and Pediatric Patients With Nodular Lymphocyte-Predominant Hodgkin Lymphoma (NLPHL)
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Age 8 years or older
- Patient or their adult proxy must have verbal and written English language proficiency
- Pathologically confirmed diagnosis of nodular lymphocyte-predominant Hodgkin lymphoma (NLPHL), including those with transformed lymphoma at or after diagnosis
- Patient or adult proxy must be able to provide consent
- Patient and/or adult proxy must be able to complete electronic quality of life surveys
You will not qualify if you...
- Age 7 years or younger
- Patient or adult proxy lacks verbal and written English language proficiency
- Patients with histologic evidence of a composite lymphoma (NLPHL with concurrent Hodgkin lymphoma, indolent non-Hodgkin lymphoma, or gray zone lymphoma) at diagnosis
- Inability or unwillingness of participant or legal guardian/representative to provide consent
AI-Screening
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Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 7 locations
1
Stanford University Medical Center
Palo Alto, California, United States, 94304
Actively Recruiting
2
University of Colorado Hospital
Aurora, Colorado, United States, 80045
Actively Recruiting
3
Dana-Farber Cancer Institute
Boston, Massachusetts, United States, 02215
Actively Recruiting
4
Hackensack University Medical Center
Hackensack, New Jersey, United States, 08837
Actively Recruiting
5
Memorial Sloan Kettering Cancer Center
New York, New York, United States, 10065
Actively Recruiting
6
The University of Rochester Medical Center
Rochester, New York, United States, 14642
Actively Recruiting
7
St. Jude Children's Research Hospital
Memphis, Tennessee, United States, 38105
Actively Recruiting
Research Team
V
Valerie Crabtree, PhD
CONTACT
J
Jessi Rogers Blake, BSN, RN,CCRP
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
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