Actively Recruiting
Pediatric Pulmonary Hypertension Network (PPHNet) Informatics Registry
Led by New York Medical College · Updated on 2025-03-13
2500
Participants Needed
14
Research Sites
895 weeks
Total Duration
On this page
Sponsors
N
New York Medical College
Lead Sponsor
N
National Heart, Lung, and Blood Institute (NHLBI)
Collaborating Sponsor
AI-Summary
What this Trial Is About
Patients are being asked to be in this research study because medical researchers hope that by gathering information about a large number of children with pulmonary hypertension over time, their understanding of the disease process will increase and lead to better treatment. Investigators believe that pulmonary hypertension in children is different than pulmonary hypertension in adults and this study will help us understand those differences.
CONDITIONS
Official Title
Pediatric Pulmonary Hypertension Network (PPHNet) Informatics Registry
Who Can Participate
Eligibility Criteria
You may qualify if you...
- The subject's age of onset of pulmonary hypertension must be prior to age 18 years
- The person providing consent must be able to read either Spanish or English.
- The subject (and/or parent/legal guardian) must be able to provide informed consent
You will not qualify if you...
- Diagnosed with pulmonary hypertension after age 18
- Refusal to sign informed consent
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 14 locations
1
Stanford University Medical Center
Palo Alto, California, United States
Actively Recruiting
2
University California San Francisco
San Francisco, California, United States
Actively Recruiting
3
Children's Hospital Colorado
Aurora, Colorado, United States, 80045
Actively Recruiting
4
Johns Hopkins All Children's Heart Institute
St. Petersburg, Florida, United States
Actively Recruiting
5
Johns Hopkins Children's Center
Baltimore, Maryland, United States
Actively Recruiting
6
Boston Children's Hospital
Boston, Massachusetts, United States
Actively Recruiting
7
Columbia University Medical Center
New York, New York, United States
Actively Recruiting
8
Maria Fareri Children's Hospital at WMC Health/Westchester Medical Center
New York, New York, United States
Not Yet Recruiting
9
Cincinnati Children's Hospital Medical Center
Cincinnati, Ohio, United States
Actively Recruiting
10
Children's Hospital of Philadelphia
Philadelphia, Pennsylvania, United States
Actively Recruiting
11
Vanderbilt University Medical Center
Nashville, Tennessee, United States
Actively Recruiting
12
Texas Children's
Houston, Texas, United States
Not Yet Recruiting
13
Seattle Children's Hospital
Seattle, Washington, United States
Actively Recruiting
14
University of Alberta Edmonton
Edmonton, Alberta, Canada
Actively Recruiting
Research Team
E
Erika B Rosenzweig, MD
CONTACT
R
Robin Mascotti
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
1
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