Actively Recruiting
Phase 4 of Designed With You
Led by Johns Hopkins University · Updated on 2026-01-29
20
Participants Needed
1
Research Sites
43 weeks
Total Duration
On this page
Sponsors
J
Johns Hopkins University
Lead Sponsor
N
National Institute on Disability, Independent Living, and Rehabilitation Research
Collaborating Sponsor
AI-Summary
What this Trial Is About
The purpose of this study is to provide evaluate the feasibility of a structured 8-10-week, multi-component intervention that integrates individualized resource navigation, personalized self-care planning, emergency and end of life (EOL) preparedness, and peer support to improve the well-being, resource access and social connectedness of caregivers with disabilities. For this study we are interested in caregivers over the age of 18 who have some form (e.g. mobility or sensory) disability and are caring for a person with a disability and/or a chronic illness.
CONDITIONS
Official Title
Phase 4 of Designed With You
Who Can Participate
Eligibility Criteria
You may qualify if you...
- 18 years of age and older
- Living in the community in the state of Maryland
- Self-report of physical or sensory disability
- Self-report of serving as a family caregiver for a person for at least 10 hours per week
You will not qualify if you...
- Terminal diagnosis with expected survival less than 1 year
- Severe cognitive impairment with 5 to 7 errors on the Short Portable Mental Status Questionnaire (SPMQ)
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
Johns Hopkins School of Nursing
Baltimore, Maryland, United States, 21205
Actively Recruiting
Research Team
J
Janiece Taylor, PhD, RN
CONTACT
A
Alicia Cooke
CONTACT
How is the study designed?
Study Type
INTERVENTIONAL
Masking
NONE
Allocation
NA
Model
SINGLE_GROUP
Primary Purpose
OTHER
Number of Arms
1
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