Actively Recruiting
Phenotypic and Etiological Characterization of Susac Syndrome
Led by Assistance Publique - Hôpitaux de Paris · Updated on 2026-05-07
180
Participants Needed
1
Research Sites
1024 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
SUSAC's Syndrome (SS) is characterized by the clinical triad of encephalopathy, hearing loss, and retinal artery branch occlusions. Since the first description of SS in 1979, hundreds of patients with SS, mostly young women, have been reported. However, comprehensive epidemiological, clinical and etiological features of SS have never been specifically addressed so far.
CONDITIONS
Official Title
Phenotypic and Etiological Characterization of Susac Syndrome
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Patient over 18 years of age
- Patient presenting with at least two of the signs of the clinical triad: encephalopathy, cochlear damage authenticated by an audiogram (uni- or bilateral, predominantly in the middle or low frequencies), retinal artery occlusion assessed by fundoscopy or fluorescein retinal angiography.
You will not qualify if you...
- Patient having been individually informed and objecting to the use of his/her data
- Patient under legal protection (guardianship or curatorship)
- Differential diagnosis established: multiple sclerosis, mitochondriopathy, CADASIL, primary tumour of the central nervous system, Lyme disease.
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
Hôpital Bichat
Paris, France, 75018
Actively Recruiting
Research Team
K
Karim Sacre, MD, PHD
CONTACT
T
Thomas Papo, MD, PHD
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
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