Actively Recruiting
Pompe Disease Registry Protocol
Led by Genzyme, a Sanofi Company · Updated on 2026-04-28
2000
Participants Needed
272
Research Sites
1532 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
The Pompe Registry is a global, multicenter, international, longitudinal, observational, and voluntary program for patients with Pompe disease, designed to track the disease's natural history and outcomes in patients, both treated and not. Data from the Registry are also used to fulfill various global regulatory commitments, to support product development/reimbursement, and for other research and non-research related purposes. The objectives of the Registry are: * To enhance understanding of the variability, progression, identification, and natural history of Pompe disease, with the ultimate goal of better guiding and assessing therapeutic intervention. * To assist the Pompe medical community with the development of recommendations for monitoring patients, and to provide reports on patient outcomes, to optimize patient care. * To characterize the Pompe disease population. * To evaluate the long-term effectiveness of alglucosidase alfa.
CONDITIONS
Official Title
Pompe Disease Registry Protocol
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Confirmed diagnosis of Pompe disease by documented GAA enzyme deficiency from blood, skin, or muscle tissue and/or documentation of 2 GAA gene mutations
- Signed informed consent and authorization form(s)
You will not qualify if you...
History of severe allergic reactions to study medication Currently pregnant or breastfeeding Recent participation in another clinical trial within the last 30 days Presence of uncontrolled medical conditions that could affect safety
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 272 locations
1
University of Alabama at Birmingham- Site Number : 840106
Birmingham, Alabama, United States, 35233
Actively Recruiting
2
Barrow Neurological Institute- Site Number : 840087
Phoenix, Arizona, United States, 85013
Actively Recruiting
3
Phoenix Children's Hospital- Site Number : 840003
Phoenix, Arizona, United States, 85016
Actively Recruiting
4
University of Arizona- Site Number : 840015
Tucson, Arizona, United States, 85724
Actively Recruiting
5
Arkansas Children's Hospital- Site Number : 840109
Little Rock, Arkansas, United States, 72202
Actively Recruiting
6
University of Arkansas for Medical Sciences- Site Number : 840113
Little Rock, Arkansas, United States, 72205
Actively Recruiting
7
University of California at Irvine- Site Number : 840036
Irvine, California, United States, 90211
Actively Recruiting
8
Loma Linda University- Genetics- Site Number : 840070
Loma Linda, California, United States, 92354
Completed
9
Southern California Permanente Medical Group- Site Number : 840108
Los Angeles, California, United States, 90027
Actively Recruiting
10
USC Health Sciences Center Dept of Genetics- Site Number : 840082
Los Angeles, California, United States, 90033
Completed
11
UCSF Benioff Children's Hospital - Oakland- Site Number : 840029
Oakland, California, United States, 94609
Completed
12
Children's Hospital of Orange County- Site Number : 840074
Orange, California, United States, 92868
Actively Recruiting
13
UC Davis MIND Institute- Site Number : 840010
Sacramento, California, United States, 95817
Actively Recruiting
14
University of California at San Diego- Site Number : 840007
San Diego, California, United States, 92093
Completed
15
University of California San Francisco - Parnassus Campus- Site Number : 840051
San Francisco, California, United States, 94143
Actively Recruiting
16
Stanford University Pediatrics- Site Number : 840021
Stanford, California, United States, 94305
Actively Recruiting
17
Children's Hospital Colorado - Aurora- Site Number : 840069
Aurora, Colorado, United States, 80045
Completed
18
Yale University School of Medicine- Site Number : 840047
New Haven, Connecticut, United States, 06510
Actively Recruiting
19
Children's National Medical Center - Washington- Site Number : 840067
Washington D.C., District of Columbia, United States, 20010
Actively Recruiting
20
University of Florida College of Medicine- Site Number : 840012
Gainesville, Florida, United States, 32610
Actively Recruiting
21
University of Florida Pediatrics Genetics- Site Number : 840121
Jacksonville, Florida, United States, 32207
Actively Recruiting
22
University Of Miami SOM- Site Number : 840006
Miami, Florida, United States, 33136
Actively Recruiting
23
University of Florida-Genetics- Site Number : 840096
Tampa, Florida, United States, 33606
Actively Recruiting
24
Emory University School of Medicine- Human Genetics- Site Number : 840060
Decatur, Georgia, United States, 30033
Actively Recruiting
25
University of Colorado at Denver Genetics- Site Number : 840068
Aurora, Illinois, United States, 80045
Actively Recruiting
26
Ann & Robert H. Lurie Children's Hospital of Chicago- Site Number : 840011
Chicago, Illinois, United States, 60611
Actively Recruiting
27
Ann & Robert H. Lurie Children's Hospital of Chicago- Site Number : 840013
Chicago, Illinois, United States, 60611
Actively Recruiting
28
Rush University Medical Center Genetics- Site Number : 840079
Chicago, Illinois, United States, 60612
Actively Recruiting
29
Indianapolis University School of Medicine- Site Number : 840027
Indianapolis, Indiana, United States, 46202
Actively Recruiting
30
University of Iowa- Site Number : 840032
Iowa City, Iowa, United States, 52242
Actively Recruiting
31
University Of Kansas Medical Center- Site Number : 840020
Kansas City, Kansas, United States, 66160
Actively Recruiting
32
University of Louisville - Health Sciences Center- Site Number : 840030
Louisville, Kentucky, United States, 40202
Completed
33
Maine Medical Partners Pediatric Specialty Care- Site Number : 840064
Portland, Maine, United States, 04102
Actively Recruiting
34
John Hopkins- Site Number : 840044
Baltimore, Maryland, United States, 21205
Completed
35
Massachusetts General Hospital-Genetics- Site Number : 840062
Boston, Massachusetts, United States, 02114
Actively Recruiting
36
Boston Children's Hospital - PIN- Site Number : 840092
Boston, Massachusetts, United States, 02115
Actively Recruiting
37
Baystate Medical Center- Site Number : 840002
Springfield, Massachusetts, United States, 01199
Actively Recruiting
38
University of Michigan Pediatrics- Site Number : 840107
Ann Arbor, Michigan, United States, 48109
Actively Recruiting
39
Children's Hospital of Michigan- Site Number : 840066
Detroit, Michigan, United States, 48201
Actively Recruiting
40
Corewell Health - Helen DeVos Children's Hospital (HDVCH)- Site Number : 840019
Grand Rapids, Michigan, United States, 49503
Completed
41
Infusion Associates - Grand Rapids- Site Number : 840050
Grand Rapids, Michigan, United States, 49525
Actively Recruiting
42
Children's Hospitals and Clinics of Minnesota- Site Number : 840046
Minneapolis, Minnesota, United States, 55404
Completed
43
Children's Hospitals and Clinics of Minnesota- Site Number : 840114
Minneapolis, Minnesota, United States, 55404
Actively Recruiting
44
M Health Fairview University of Minnesota Medical Center - West Bank- Site Number : 840035
Minneapolis, Minnesota, United States, 55454
Actively Recruiting
45
M Health Fairview University of Minnesota Medical Center - West Bank- Site Number : 840076
Minneapolis, Minnesota, United States, 55454
Actively Recruiting
46
University of Missouri Health System Department of Genetics- Site Number : 840031
Columbia, Missouri, United States, 65212
Actively Recruiting
47
Children's Mercy Adelle Hall Campus- Site Number : 840063
Kansas City, Missouri, United States, 64108
Completed
48
Washington University- Site Number : 840100
St Louis, Missouri, United States, 63110
Actively Recruiting
49
University of Nebraska Medical Center- Site Number : 840084
Omaha, Nebraska, United States, 68198
Actively Recruiting
50
Children's Specialty Center - Las Vegas- Site Number : 840008
Las Vegas, Nevada, United States, 89109
Actively Recruiting
51
Cooper Health Center- Site Number : 840098
Camden, New Jersey, United States, 08103
Terminated
52
Hackensack Meridian Health - Hackensack University Medical Center- Site Number : 840101
Hackensack, New Jersey, United States, 07601
Actively Recruiting
53
Atlantic Health System- Site Number : 840099
Morristown, New Jersey, United States, 07962
Actively Recruiting
54
Saint Peter's University Hospital - New Brunswick- Site Number : 840016
New Brunswick, New Jersey, United States, 08901
Actively Recruiting
55
St. Joseph's Children's Hospital- Site Number : 840057
Paterson, New Jersey, United States, 07503
Actively Recruiting
56
NYU Langone Health - Perlmutter Cancer Center - Huntington- Site Number : 840040
Huntington, New York, United States, 11743
Actively Recruiting
57
Northwell Health- Site Number : 840102
New Hyde Park, New York, United States, 11042
Actively Recruiting
58
Metropolitan Hospital Center- Site Number : 840110
New York, New York, United States, 10029
Actively Recruiting
59
Mt. Sinai School of Medicine- Site Number : 840005
New York, New York, United States, 10029
Actively Recruiting
60
Columbia University Irving Medical Center- Site Number : 840125
New York, New York, United States, 10032
Actively Recruiting
61
University of Rochester Medical Center- Site Number : 840105
Rochester, New York, United States, 14642
Completed
62
SUNY Upstate Medical University - Site Number : 840052
Syracuse, New York, United States, 13210
Actively Recruiting
63
New York Medical College- Site Number : 840039
Valhalla, New York, United States, 10595
Actively Recruiting
64
Carolinas Medical Center Hospital- Site Number : 840065
Charlotte, North Carolina, United States, 28232
Actively Recruiting
65
Duke University Medical Center Genetics Dept- Site Number : 840037
Durham, North Carolina, United States, 27710
Actively Recruiting
66
University of Cincinnati Medical Center- Site Number : 840124
Cincinnati, Ohio, United States, 45219
Actively Recruiting
67
Cincinnati Children's Hospital Medical Center (Cincinnati Children's Hospital)- Site Number : 840041
Cincinnati, Ohio, United States, 45229
Actively Recruiting
68
University Hospitals Cleveland Medical Center- Site Number : 840119
Cleveland, Ohio, United States, 44106
Actively Recruiting
69
Cleveland Clinic - Cleveland- Site Number : 840048
Cleveland, Ohio, United States, 44195
Actively Recruiting
70
Nationwide Children's Hospital- Site Number : 840091
Columbus, Ohio, United States, 43205
Actively Recruiting
71
LSD Data Registry Site LLC- Site Number : 840094
Dublin, Ohio, United States, 43017
Actively Recruiting
72
Oregon Health & Science University (OHSU)- Site Number : 840080
Portland, Oregon, United States, 97239
Actively Recruiting
73
Oregon Health & Science University (OHSU)- Site Number : 840095
Portland, Oregon, United States, 97239
Terminated
74
Oregon Health and Scinece University- Site Number : 840038
Portland, Oregon, United States, 97239
Terminated
75
Penn Hershey Medical Center- Site Number : 840061
Hershey, Pennsylvania, United States, 17033
Completed
76
Penn State Health Milton South Hershey Medical Center- Site Number : 840126
Hershey, Pennsylvania, United States, 17033
Actively Recruiting
77
Children's Hospital of Philadelphia HUP Medical Genetics- Site Number : 840089
Philadelphia, Pennsylvania, United States, 19104
Actively Recruiting
78
Children's Hospital of Philadelphia- Site Number : 840034
Philadelphia, Pennsylvania, United States, 19104
Actively Recruiting
79
UPMC Children's Hospital of Pittsburgh- Site Number : 840014
Pittsburgh, Pennsylvania, United States, 15224
Actively Recruiting
80
UPMC Children's Hospital of Pittsburgh- Site Number : 840023
Pittsburgh, Pennsylvania, United States, 15224
Actively Recruiting
81
Rhode Island Hospital Genetics- Site Number : 840053
Providence, Rhode Island, United States, 02903
Completed
82
Greenwood Genetic Center - Greenville- Site Number : 840055
Greenville, South Carolina, United States, 29605
Actively Recruiting
83
Vanderbilt University Medical Center Diagnostic Lab- Site Number : 840049
Nashville, Tennessee, United States, 37212
Actively Recruiting
84
Baylor Institute of Metabolic Disease- Site Number : 840058
Dallas, Texas, United States, 75226
Actively Recruiting
85
Cook Children's Health Care System- Site Number : 840024
Fort Worth, Texas, United States, 76104
Actively Recruiting
86
University of Utah Department of Medical Genetics- Site Number : 840043
Salt Lake City, Utah, United States, 84132
Actively Recruiting
87
University of Virginia School of Medicine-Pediatrics- Site Number : 840078
Charlottesville, Virginia, United States, 22908
Completed
88
O & O Alpan- Site Number : 840025
Fairfax, Virginia, United States, 22030
Actively Recruiting
89
Children's Hospital of The King's Daughters- Site Number : 840072
Norfolk, Virginia, United States, 23507
Completed
90
Seattle Children's Hospital- Site Number : 840028
Seattle, Washington, United States, 98105
Actively Recruiting
91
University Of Washington Medical Center- Site Number : 840059
Seattle, Washington, United States, 98195
Actively Recruiting
92
Mary Bridge Children's Hospital & Health Center- Site Number : 840115
Tacoma, Washington, United States, 98405
Actively Recruiting
93
Children's Hospital of Wisconsin-Pediatrics- Site Number : 840054
Milwaukee, Wisconsin, United States, 53226
Actively Recruiting
94
Investigational Site Number : 153195
Caba, Buenos Aires, Buenos Aires, Argentina, C1415EKV
Actively Recruiting
95
Investigational Site Number : 152218
CABA, Buenos Aires, Argentina, 1424
Actively Recruiting
96
Investigational Site Number : 153194
Buenos Aires, Argentina, 1181
Active, Not Recruiting
97
Investigational Site Number : 153032
Buenos Aires, Argentina, 1192
Completed
98
Investigational Site Number : 036013
Westmead, New South Wales, Australia, 2145
Actively Recruiting
99
Investigational Site Number : 151069
Westmead, New South Wales, Australia, 2145
Actively Recruiting
100
Investigational Site Number : 154087
Brisbane, Queensland, Australia, 4029
Completed
101
Investigational Site Number : 152096
Brisbane, Queensland, Australia, 4101
Terminated
102
Investigational Site Number : 151015
Murdoch, Western Australia, Australia, 6150
Actively Recruiting
103
Investigational Site Number : 150722
Antwerp, Belgium, 2020
Actively Recruiting
104
Investigational Site Number : 154298
Bruges, Belgium, 8000
Actively Recruiting
105
Investigational Site Number : 150684
Brussels, Belgium, 1070
Completed
106
Investigational Site Number : 056010
Brussels, Belgium, 1200
Actively Recruiting
107
Investigational Site Number : 152072
Edegem, Belgium, 2650
Actively Recruiting
108
Investigational Site Number : 152295
Ghent, Belgium, 9000
Actively Recruiting
109
Investigational Site Number : 153179
Gosselies, Belgium, 6041
Actively Recruiting
110
Investigational Site Number : 151668
Leuven, Belgium, 3000
Actively Recruiting
111
Investigational Site Number : 152126
Leuven, Belgium, 3000
Actively Recruiting
112
Hospital Universitario Walter Cantidio- Site Number : 076011
Fortaleza, Ceará, Brazil, 60430-270
Completed
113
Hospital Geral Universitario de Cuiaba- Site Number : 076003
Cuiabá, Mato Grosso, Brazil, 78025-000
Actively Recruiting
114
Hospital de Clinicas de Porto Alegre- Site Number : 076008
Porto Alegre, Rio Grande do Sul, Brazil, 90035903
Actively Recruiting
115
Hospital das Clinicas da Faculdade de Medicina de Ribeirao Preto- Site Number : 076009
Ribeirão Preto, São Paulo, Brazil, 14049-900
Actively Recruiting
116
Instituto Fernandes Figueira - FIOCRUZ- Site Number : 076001
Rio de Janeiro, Brazil, 22250-020
Actively Recruiting
117
Instituto de Genética e Erros Inatos do Metabolismo- Site Number : 076002
São Paulo, Brazil, 04020-041
Actively Recruiting
118
Hospital das Clinicas da Faculdade de Medicina da Universidade de Sao Paulo- Site Number : 076004
São Paulo, Brazil, 05403-000
Completed
119
Hospital das Clinicas da Faculdade de Medicina da Universidade de Sao Paulo- Site Number : 076007
São Paulo, Brazil, 05403-000
Completed
120
Investigational Site Number : 100001
Sofia, Bulgaria, 1680
Actively Recruiting
121
Investigational Site Number : 124014
Calgary, Alberta, Canada, T2E 7Z4
Actively Recruiting
122
Investigational Site Number : 124002
Edmonton, Alberta, Canada, T6G 2B7
Actively Recruiting
123
Investigational Site Number : 124007
Lethbridge, Alberta, Canada, T1J 0N9
Actively Recruiting
124
Investigational Site Number : 124010
Vancouver, British Columbia, Canada, V5Z 1M9
Actively Recruiting
125
Investigational Site Number : 124011
Vancouver, British Columbia, Canada, V6H 3N1
Completed
126
Investigational Site Number : 124019
Winnipeg, Manitoba, Canada, R3A 1R9
Actively Recruiting
127
Investigational Site Number : 124022
Moncton, New Brunswick, Canada, E1C 2Z3
Actively Recruiting
128
Investigational Site Number : 124021
London, Ontario, Canada, N6A 5A5
Actively Recruiting
129
Investigational Site Number : 124018
Ottawa, Ontario, Canada, K1K 4L2
Actively Recruiting
130
Investigational Site Number : 124006
Toronto, Ontario, Canada, M5G 1X8
Actively Recruiting
131
Investigational Site Number : 124004
Montreal, Quebec, Canada, H3A2B4
Actively Recruiting
132
Investigational Site Number : 124001
Sherbrooke, Quebec, Canada, J1K 2R1
Actively Recruiting
133
Investigational Site Number : 152002
Punta Arenas, Chile
Completed
134
Investigational Site Number : 152001
Santiago, Chile
Completed
135
Investigational Site Number : 152380
Beijing, China, 100730
Terminated
136
Investigational Site Number : 153202
Beijing, China, 100730
Terminated
137
Investigational Site Number : 153203
Beijing, China, 100730
Completed
138
Investigational Site Number : 152379
Guangzhou, China, 510620
Terminated
139
Investigational Site Number : 152381
Jinan, China, 250014
Terminated
140
Investigational Site Number : 157250
Jinan, China, 250014
Actively Recruiting
141
Investigational Site Number : 152382
Shanghai, China, 200040
Terminated
142
Investigational Site Number : 152356
Shanghai, China, 200092
Terminated
143
Investigational Site Number : 170001
Bogotá, Colombia, 11001000
Actively Recruiting
144
Investigational Site Number : 1910001
Zagreb, Croatia, 10000
Actively Recruiting
145
Investigational Site Number : 1910002
Zagreb, Croatia, 10000
Actively Recruiting
146
Investigational Site Number : 150809
Prague, Czechia, 12808
Actively Recruiting
147
Investigational Site Number : 151229
Copenhagen, Denmark, 2100
Actively Recruiting
148
Investigational Site Number : 250010
Bordeaux, France, 33076
Completed
149
Investigational Site Number : 250012
Brest, France, 29200
Actively Recruiting
150
Investigational Site Number : 250003
Bron, France, 69677
Actively Recruiting
151
Investigational Site Number : 250007
Bron, France, 69677
Actively Recruiting
152
Investigational Site Number : 250009
Caen, France, 14033
Actively Recruiting
153
Investigational Site Number : 250015
La Tronche, France, 38700
Actively Recruiting
154
Investigational Site Number : 250008
Lille, France, 59037
Actively Recruiting
155
Investigational Site Number : 250002
Marseille, France, 13885
Completed
156
Investigational Site Number : 250017
Nancy, France, 54035
Actively Recruiting
157
Investigational Site Number : 250019
Nantes, France, 44093
Actively Recruiting
158
Investigational Site Number : 250005
Nice, France, 06001
Actively Recruiting
159
Investigational Site Number : 250011
Nîmes, France, 30029
Actively Recruiting
160
Investigational Site Number : 250004
Paris, France, 75015
Actively Recruiting
161
Investigational Site Number : 250001
Paris, France, 75651
Actively Recruiting
162
Investigational Site Number : 250018
Saint-Priest-en-Jarez, France, 42270
Actively Recruiting
163
Investigational Site Number : 250016
Strasbourg, France, 67200
Actively Recruiting
164
Investigational Site Number : 250014
Toulouse, France, 31059
Actively Recruiting
165
Investigational Site Number : 250006
Tours, France, 37032
Actively Recruiting
166
Investigational Site Number : 25013
Vannes, France, 56017
Actively Recruiting
167
Investigational Site Number : 152041
Berlin, Germany, 13125
Completed
168
Investigational Site Number : 151686
Berlin, Germany, 13353
Actively Recruiting
169
Investigational Site Number : 152293
Berlin, Germany, 13353
Actively Recruiting
170
Investigational Site Number : 152234
Bochum, Germany, 44789
Actively Recruiting
171
Investigational Site Number : 152200
Bonn, Germany, 53127
Actively Recruiting
172
Investigational Site Number : 152108
Freiburg im Breisgau, Germany, 79106
Actively Recruiting
173
Investigational Site Number : 154150
Giessen, Germany, 35392
Actively Recruiting
174
Investigational Site Number : 152045
Halle, Germany, 06120
Actively Recruiting
175
Investigational Site Number : 154215
Hamburg, Germany, 20354
Actively Recruiting
176
Investigational Site Number : 150031
Mainz, Germany, 55131
Actively Recruiting
177
Investigational Site Number : 152075
Munich, Germany, 80539
Actively Recruiting
178
Investigational Site Number : 152299
Münster, Germany, 48149
Completed
179
Investigational Site Number : 300001
Thessaloniki, Greece, 546 42
Actively Recruiting
180
Investigational Site Number : 344001
Kowloon, Hong Kong
Actively Recruiting
181
Investigational Site Number : 3480009
Debrecen, Hungary, 4032
Actively Recruiting
182
Investigational Site Number : 3480007
Nyiregyháza, Hungary, 4400
Actively Recruiting
183
Investigational Site Number : 3480011
Pécs, Hungary, 7623
Actively Recruiting
184
Investigational Site Number : 356003
Ahmedabad, India, 380015
Actively Recruiting
185
Investigational Site Number : 356001
Kolkata, India, 700017
Actively Recruiting
186
Investigational Site Number : 3560004
Secunderabad, India, 500026
Actively Recruiting
187
Investigational Site Number : 356002
Vellore, India, 632004
Actively Recruiting
188
Investigational Site Number : 360001
Jakarta, Indonesia
Actively Recruiting
189
Investigational Site Number : 3760002
Beersheba, Israel
Actively Recruiting
190
Investigational Site Number : 3760001
Haifa, Israel
Actively Recruiting
191
Investigational Site Number : 3760003
Tel Aviv, Israel
Completed
192
Investigational Site Number : 380020
Gussago, Brescia, Italy, 25064
Actively Recruiting
193
Investigational Site Number : 380014
Cona, Ferrara, Italy, 44124
Actively Recruiting
194
Investigational Site Number : 380005
Florence, Firenze, Italy, 50139
Actively Recruiting
195
Investigational Site Number : 380007
Milan, Milano, Italy, 20133
Actively Recruiting
196
Investigational Site Number : 380011
Padua, Padova, Italy, 35128
Actively Recruiting
197
Investigational Site Number : 380015
Rome, Roma, Italy, 00165
Actively Recruiting
198
Investigational Site Number : 380008
Brescia, Italy, 25123
Actively Recruiting
199
Investigational Site Number : 380006
Cagliari, Italy, 09126
Actively Recruiting
200
Investigational Site Number : 380013
Messina, Italy, 98125
Actively Recruiting
201
Investigational Site Number : 380016
Milan, Italy, 20122
Actively Recruiting
202
Investigational Site Number : 380009
Monza, Italy
Actively Recruiting
203
Investigational Site Number : 380019
Naples, Italy
Actively Recruiting
204
Investigational Site Number : 380002
Padova, Italy, 35128
Actively Recruiting
205
Investigational Site Number : 380003
Pavia, Italy, 27100
Actively Recruiting
206
Investigational Site Number : 157218
Pisa, Italy, 56126
Actively Recruiting
207
Investigational Site Number : 380012
Roma, Italy
Actively Recruiting
208
Investigational Site Number : 380017
Torino, Italy, 10126
Actively Recruiting
209
Investigational Site Number : 380001
Udine, Italy, 33100
Actively Recruiting
210
Investigational Site Number : 392105
Ginowan, Okinawa, Japan, 901-2214
Completed
211
Investigational Site Number : 392106
Kyoto, Japan, 606-8507
Completed
212
Investigational Site Number : 4000001
Amman, Jordan, 261
Actively Recruiting
213
Investigational Site Number : 154225
Kuwait City, Kuwait
Completed
214
Investigational Site Number : 4220004
Beirut, Lebanon, 11072210
Actively Recruiting
215
Investigational Site Number : 458001
Kuala Lumpur, Malaysia, 50586
Actively Recruiting
216
Investigational Site Number : 458002
Kuala Lumpur, Malaysia, 59100
Actively Recruiting
217
Investigational Site Number : 152029
Rotterdam, Netherlands, 3015 CE
Actively Recruiting
218
Investigational Site Number : 154264
Karachi, Pakistan
Actively Recruiting
219
Investigational Site Number : 154266
Lahore, Pakistan
Actively Recruiting
220
Investigational Site Number : 608001
City of Muntinlupa, Philippines, 1000
Actively Recruiting
221
Investigational Site Number : 150575
Warsaw, Poland, 04-730
Actively Recruiting
222
Investigational Site Number : 620008
Coimbra, Portugal, 3000-075
Actively Recruiting
223
Investigational Site Number : 620006
Lisbon, Portugal, 1649-035
Actively Recruiting
224
Investigational Site Number : 154099
Bucharest, Romania, 022328
Actively Recruiting
225
Investigational Site Number : 643002
Moscow, Russia, 117258
Completed
226
Investigational Site Number : 682001
Al Qaţīf, Saudi Arabia
Completed
227
Investigational Site Number : 682004
Mecca, Saudi Arabia, 24246
Actively Recruiting
228
Investigational Site Number : 6880001
Belgrade, Serbia, 11000
Completed
229
Investigational Site Number : 702001
Singapore, Singapore, 229899
Actively Recruiting
230
Investigational Site Number : 703001
Bratislava, Slovakia, 833 40
Completed
231
Investigational Site Number : 153178
Yangsan, Gyeongsangnam-do, South Korea, 50612
Completed
232
Investigational Site Number : 153180
Seoul, Seoul-teukbyeolsi, South Korea, 03080
Actively Recruiting
233
Investigational Site Number : 153196
Seoul, Seoul-teukbyeolsi, South Korea, 03080
Completed
234
Investigational Site Number : 153192
Seoul, Seoul-teukbyeolsi, South Korea, 04401
Completed
235
Investigational Site Number : 151149
Seoul, Seoul-teukbyeolsi, South Korea, 05505
Actively Recruiting
236
Investigational Site Number : 153176
Seoul, Seoul-teukbyeolsi, South Korea, 06273
Actively Recruiting
237
Investigational Site Number : 153222
Seoul, Seoul-teukbyeolsi, South Korea, 06973
Actively Recruiting
238
Investigational Site Number : 153191
Daejeon, South Korea
Actively Recruiting
239
Investigational Site Number : 153212
Seoul, South Korea
Actively Recruiting
240
Investigational Site Number : 151500
Chiayi City, Taiwan
Actively Recruiting
241
Investigational Site Number : 154093
Chiayi City, Taiwan
Actively Recruiting
242
Investigational Site Number : 152152
Hualien City, Taiwan, 970
Actively Recruiting
243
Investigational Site Number : 152244
Kaohsiung City, Taiwan, 807
Actively Recruiting
244
Investigational Site Number : 152246
Kaohsiung City, Taiwan, 833
Actively Recruiting
245
Investigational Site Number : 151534
New Taipei City, Taiwan, 231
Actively Recruiting
246
Investigational Site Number : 151179
Taichung, Taiwan, 404
Actively Recruiting
247
Investigational Site Number : 151181
Taichung, Taiwan, 411
Actively Recruiting
248
Investigational Site Number : 153248
Tainan, Taiwan, 704
Actively Recruiting
249
Investigational Site Number : 152153
Tainan, Taiwan, 710
Actively Recruiting
250
Investigational Site Number : 151182
Taipei, Taiwan, 100
Actively Recruiting
251
Investigational Site Number : 152321
Taipei, Taiwan, 104
Actively Recruiting
252
Investigational Site Number : 152226
Taipei, Taiwan, 112
Actively Recruiting
253
Investigational Site Number : 153158
Tao Yuan County, Taiwan, 333
Actively Recruiting
254
Investigational Site Number : 764002
Bangkok, Thailand, 10400
Completed
255
Investigational Site Number : 764003
Bangkok, Thailand, 10400
Actively Recruiting
256
Investigational Site Number : 764004
Bangkok, Thailand, 10700
Actively Recruiting
257
Investigational Site Number : 764001
Bangkok, Thailand
Actively Recruiting
258
Investigational Site Number : 764005
Khon Kaen, Thailand, 40002
Actively Recruiting
259
Investigational Site Number : 7840001
Dubai, United Arab Emirates
Actively Recruiting
260
Investigational Site Number : 151340
Cambridge, Cambridgeshire, United Kingdom, CB2 2QQ
Actively Recruiting
261
Investigational Site Number : 152334
Cardiff, Cardiff [Caerdydd Gb-crd], United Kingdom, CF14 4XW
Actively Recruiting
262
Investigational Site Number : 152287
Birmingham, England, United Kingdom, B15 2TH
Actively Recruiting
263
Investigational Site Number : 154240
Birmingham, England, United Kingdom, B4 6NH
Actively Recruiting
264
Investigational Site Number : 151123
London, England, United Kingdom, NW3 2QG
Actively Recruiting
265
Investigational Site Number : 152156
Glasgow, Glasgow City, United Kingdom, G51 4TF
Actively Recruiting
266
Investigational Site Number : 151646
London, London, City of, United Kingdom, WC1N 3BG
Actively Recruiting
267
Investigational Site Number : 150303
London, London, City of, United Kingdom, WC1N 3JH
Actively Recruiting
268
Investigational Site Number : 150964
Salford, Manchester, United Kingdom, M6 8HD
Actively Recruiting
269
Investigational Site Number : 150455
Manchester, United Kingdom, M86rb
Actively Recruiting
270
Investigational Site Number : 152087
Newcastle upon Tyne, United Kingdom, NE1 7XE
Actively Recruiting
271
Investigational Site Number : 154212
Hanoi, Vietnam
Actively Recruiting
272
Investigational Site Number : 704002
Ho Chi Minh City, Vietnam, 70000
Actively Recruiting
Research Team
T
Trial Transparency email recommended (Toll free number for US & Canada)
CONTACT
P
Pompe Registry HelpLine
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
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