Actively Recruiting

Age: 20Years +
All Genders
NCT05878171

Preference of Life-Sustaining Treatment Among Patients With End Stage Renal Disease

Led by National Taiwan University Hospital · Updated on 2024-10-18

200

Participants Needed

2

Research Sites

105 weeks

Total Duration

On this page

Sponsors

N

National Taiwan University Hospital

Lead Sponsor

N

National Taipei University of Nursing and Health Sciences

Collaborating Sponsor

AI-Summary

What this Trial Is About

Although patients with kidney disease can rely on dialysis to prolong their lives, the complexity of the disease, the variability of the course of the disease, and the uncertainty of the prognosis often delay the discussion of issues at the end of life, and the deterioration of the condition often makes it impossible for the patient to express clearly or rationally. Treatment thoughts or preferences. Sufficient time is needed to think and discuss issues related to life treatment. Discuss with patients as soon as possible to help draw up end-of-life care plans, help patients realize end-of-life care preferences, assist family members to make complex treatment decisions, and alleviate medical providers' moral distress. Domestic life-sustaining treatment research is mostly signed by DNR for cancer patients and retrospective investigation of medical records, and seldom focuses on kidney disease patients and life-sustaining treatment survey preferences other than DNR content. This study sought to understand patients with kidney disease's preferences for life-sustaining care during disease progression, and to understand whether prognostic perceptions, symptom distress, dementia, and decision conflict affect patients' preferences. Pre-collected convenient sampling is expected to include 200 patients diagnosed with chronic kidney disease stage 5 or end-stage renal disease, including patients who have received regular dialysis. The survey will be conducted with a single questionnaire. There are five questionnaires, including: demographic characteristics, chronic kidney disease prognosis cognition And life-support treatment information questionnaire, short-form recall symptom assessment scale, loss of memory scale and decision-making conflict scale; after the researcher explains, the patient fills in by himself or the researcher fills in after the patient answers. It is expected that the results of the study will help clinical practitioners to understand the changes in the management of medical care for kidney disease patients when the disease worsens and assist in the management of patients' medical care, echoing the importance of advancing medical care planning in this population, for the future development of kidney disease A reference for care guidelines for debilitated patients, thereby improving care quality and satisfaction.

CONDITIONS

Official Title

Preference of Life-Sustaining Treatment Among Patients With End Stage Renal Disease

Who Can Participate

Age: 20Years +
All Genders

Eligibility Criteria

Eligible

You may qualify if you...

  • Over 20 years old
  • Diagnosed with chronic kidney disease stage V or end-stage renal disease with glomerular filtration rate less than 15ml/min/1.73m2
  • Receiving regular blood or peritoneal dialysis treatment
  • Have normal cognitive function (able to read and communicate)
  • Can communicate in Mandarin or Taiwanese
Not Eligible

You will not qualify if you...

  • Severe cognitive impairment or visual or hearing impairment preventing answering questions
  • Critically ill patients
  • Patients with chronic mental illness or related diagnosis records

AI-Screening

AI-Powered Screening

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Trial Site Locations

Total: 2 locations

1

National Taiwan University Hospital

Taipei, Taiwan, 100

Actively Recruiting

2

National Taipei University of Nursing and Health Sciences

Taipei, Taiwan

Completed

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Research Team

C

Chan-Shiuan Kuo

CONTACT

How is the study designed?

Study Type

OBSERVATIONAL

Masking

N/A

Allocation

N/A

Model

N/A

Primary Purpose

N/A

Number of Arms

0

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