Actively Recruiting

All Genders
NCT02790983

Primary Tumor Research and Outcomes Network

Led by AO Innovation Translation Center · Updated on 2026-02-25

1350

Participants Needed

19

Research Sites

634 weeks

Total Duration

On this page

Sponsors

A

AO Innovation Translation Center

Lead Sponsor

A

AO Foundation, AO Spine

Collaborating Sponsor

AI-Summary

What this Trial Is About

This project aims to establish a network of spine oncology centers dedicated to prospective multicenter research of patients diagnosed with a primary tumor of the spine and will include a comprehensive prospective clinical database which will serve as a shared research platform. Demographic, clinical, diagnostic, and therapeutic variables will be used to answer questions about survival and local recurrence, as well as questions about adverse events (AEs), morbidity data, and health-related quality of life (HRQOL) outcomes.

CONDITIONS

Official Title

Primary Tumor Research and Outcomes Network

Who Can Participate

All Genders

Eligibility Criteria

Eligible

You may qualify if you...

  • Patient with a current primary spine tumor or history of a primary spine tumor, including tumors within or surrounding the spinal column and/or spinal cord such as extradural tumors, intramedullary tumors (astrocytomas, ependymoma, etc.), and extramedullary tumors (meningiomas, neurofibromas, schwannomas, etc.)
  • Ability to understand the content of the patient information and informed consent form
  • Willingness and ability to participate in the registry according to the Registry Plan
  • Signed and dated EC/IRB approved written informed consent or written consent according to IRB/EC approved procedures for those unable to provide independent written consent
Not Eligible

You will not qualify if you...

  • Patient diagnosed with a metastatic tumor of the spine

AI-Screening

AI-Powered Screening

Complete this quick 3-step screening to check your eligibility

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Trial Site Locations

Total: 19 locations

1

University of California

Los Angeles, California, United States, 90095

Terminated

2

UCSF Medical Center

San Francisco, California, United States, 94134

Actively Recruiting

3

Johns Hopkins University School of Medicine

Baltimore, Maryland, United States, 21205

Actively Recruiting

4

Massachusetts General Hospital

Boston, Massachusetts, United States, 02114

Actively Recruiting

5

Mayo Clinic

Rochester, Minnesota, United States, 55905

Actively Recruiting

6

Memorial Sloan-Kettering Cancer Center

New York, New York, United States, 10065

Withdrawn

7

Memorial Sloan Kettering Cancer Center

New York, New York, United States, 1275

Actively Recruiting

8

Rhode Island Hospital

Providence, Rhode Island, United States, 02903

Actively Recruiting

9

The University of Texas M.D. Anderson Cancer Center

Houston, Texas, United States, 77030

Actively Recruiting

10

University of Queensland, School of Medicine

Brisbane, Australia, 4000 QLD

Withdrawn

11

Vancouver General Hospital and the University of British Columbia

Vancouver, British Columbia, Canada, V5Z 1M9

Actively Recruiting

12

Toronto Western Hospital

Toronto, Ontario, Canada, M5T 2S8

Terminated

13

Peking University 3rd Hospital

Beijing, Beijing Municipality, China, 100191

Actively Recruiting

14

Universitaetsklinikum Carl Gustav Carus der Techn. Universitaet - Dresden

Dresden, Germany, 1307

Actively Recruiting

15

National Center for Spinal Disorders and Buda Health Center

Budapest, Hungary, 1126

Actively Recruiting

16

Istituto Ortopedico Rizzoli

Bologna, Italy, 40136

Actively Recruiting

17

IRCCS Istituto Ortopedico Galeazzi

Milan, Italy, 20161

Actively Recruiting

18

Kanazawa Medical University Hospital

Kanazawa, Japan, 920-8641

Terminated

19

Oxford University Hospitals

Oxford, United Kingdom, OX3 7HE

Actively Recruiting

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Research Team

F

Felix Thomas, PhD

CONTACT

M

Mariana Cabeleira

CONTACT

How is the study designed?

Study Type

OBSERVATIONAL

Masking

N/A

Allocation

N/A

Model

N/A

Primary Purpose

N/A

Number of Arms

0

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