Actively Recruiting
Promoting Resilience Among Adolescents and Young Adults With Sickle Cell Disease
Led by Boston Children's Hospital · Updated on 2026-05-05
25
Participants Needed
1
Research Sites
253 weeks
Total Duration
On this page
Sponsors
B
Boston Children's Hospital
Lead Sponsor
N
National Institutes of Health (NIH)
Collaborating Sponsor
AI-Summary
What this Trial Is About
Adolescents and young adults with sickle cell disease (SCD) face challenges managing their illness and maintaining their well-being. This study proposes to test the feasibility and acceptability of a resilience-promoting intervention through a Collaborative Care Model. The primary goal is to determine with the resilience intervention (PRISM) is feasible and acceptable for adolescents and young adults with SCD. Exploratory outcomes include whether this intervention improves depression, anxiety, and pain interference.
CONDITIONS
Official Title
Promoting Resilience Among Adolescents and Young Adults With Sickle Cell Disease
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Aged 8 to 25 years at baseline
- Diagnosed with Sickle Cell Disease (HbSS, HbSC, HbS-Beta Thalassemia, or related hemoglobinopathies)
- Receiving medical care at the DFCI/BCH Blood Disorders Center
- Scored above 9 on Patient Health Questionnaire 9-item (PHQ-9) or Generalized Anxiety Disorder (GAD)
- Able to speak English or Spanish for PRISM sessions
- Able to read English or Spanish for completing surveys
- Cognitively able to participate in PRISM sessions and complete questionnaires, as judged by site investigator
- Willing and able to follow study visit schedule and protocol requirements
You will not qualify if you...
- Does not meet the above inclusion criteria
AI-Screening
AI-Powered Screening
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Trial Site Locations
Total: 1 location
1
Boston Children's Hospital
Boston, Massachusetts, United States, 02115
Actively Recruiting
Research Team
A
Abby Rosenberg, MD
CONTACT
How is the study designed?
Study Type
INTERVENTIONAL
Masking
NONE
Allocation
NA
Model
SINGLE_GROUP
Primary Purpose
TREATMENT
Number of Arms
1
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