Actively Recruiting

Age: 30Months - 16Years
All Genders
NCT06410976

Prospective Clinical Assessment Study in Children With Hypochondroplasia

Led by QED Therapeutics, a BridgeBio company · Updated on 2025-10-10

150

Participants Needed

25

Research Sites

121 weeks

Total Duration

On this page

AI-Summary

What this Trial Is About

This is a long-term, multicenter, non-interventional study of children ages 2.5 to \<17 years with hypochondroplasia (HCH).

CONDITIONS

Official Title

Prospective Clinical Assessment Study in Children With Hypochondroplasia

Who Can Participate

Age: 30Months - 16Years
All Genders

Eligibility Criteria

Eligible

You may qualify if you...

  • Signed informed consent.
  • Aged 2.5 to under 17 years at study entry.
  • Diagnosis of hypochondroplasia confirmed clinically by disproportionate short stature and molecular test.
  • Able to walk and stand without assistance.
  • Willing and able to comply with study visits and procedures, including participant and parent(s)/guardian(s)/caregiver(s).
Not Eligible

You will not qualify if you...

  • Have achondroplasia or other short stature conditions besides hypochondroplasia.
  • In females, have had their first menstrual period (menarche).
  • Annual height growth velocity of 1.5 cm/year or less over at least 6 months before screening.
  • Have a clinically significant disease or condition interfering with growth evaluation or study participation.
  • Abnormal laboratory test results at screening that are clinically significant.
  • Current corneal or retinal disorders.
  • Used any investigational or approved treatment for hypochondroplasia or short stature for 30 days or more, or within 6 months before screening.
  • Long-term oral corticosteroid treatment longer than 1 month (low-dose inhaled steroids for asthma allowed).
  • Previous limb-lengthening or guided growth surgery with plates still in place or removed within 6 months before screening.
  • Had a fracture of the long bones or spine within 12 months before screening.
  • History or current signs of extensive ectopic tissue calcification.
  • History of cancer.
  • Any condition that may interfere with study participation or compliance.
  • Currently participating in another clinical study with a different sponsor.

AI-Screening

AI-Powered Screening

Complete this quick 3-step screening to check your eligibility

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Trial Site Locations

Total: 25 locations

1

UCSF Benioff Children's Hospital

Oakland, California, United States, 94609

Actively Recruiting

2

Childrens Hospital Colorado

Aurora, Colorado, United States, 80045

Actively Recruiting

3

Children's National Hospital

Washington D.C., District of Columbia, United States, 20010

Actively Recruiting

4

Johns Hopkins School of Medicine

Baltimore, Maryland, United States, 21287

Actively Recruiting

5

University of Missouri

Columbia, Missouri, United States, 65201

Actively Recruiting

6

Cincinnati Children's Hospital Medical Center

Cincinnati, Ohio, United States, 45229

Actively Recruiting

7

Vanderbilt University Medical Center

Nashville, Tennessee, United States, 37232

Actively Recruiting

8

University of Wisconsin Madison - Waisman Center Bone Dysplasia Clinic

Madison, Wisconsin, United States, 53705

Actively Recruiting

9

Murdoch Children's Research Institute

Parkville, Victoria, Australia, 3052

Actively Recruiting

10

London Health Sciences Centre - Children's Hospital of Western Ontario

London, Ontario, Canada, N6C 2R5

Actively Recruiting

11

Children's Hospital of Eastern Ontario Research Institute

Ottawa, Ontario, Canada, K1H 8L1

Actively Recruiting

12

Université de Montréal - Centre Hospitalier Universitaire Sainte-Justine

Montreal, Quebec, Canada, H3T 1C5

Actively Recruiting

13

Hôpital Femme Mère Enfant HCL

Bron, France, 69677

Actively Recruiting

14

Hôpital Necker-Enfants Malades

Paris, France, 75015

Actively Recruiting

15

Centre Hospitalier Universitaire (CHU) de Toulouse - Hôpital des Enfants

Toulouse, France, 31059

Actively Recruiting

16

Haukeland University Hospital

Bergen, Norway, 5021

Actively Recruiting

17

Paediatric Clinical Research Unit at Oslo University Hospital

Oslo, Norway, 0372

Actively Recruiting

18

Hospital Pediátrico de Coimbra

Coimbra, Portugal, 3000-602

Actively Recruiting

19

KK Women's and Children's Hospital

Singapore, Singapore, 229899

Actively Recruiting

20

Hospital Vithas San Jose

Vitoria-Gasteiz, Spain, 01008

Actively Recruiting

21

Astrid Lindgren Children's Hospital

Solna, Sweden, 17164

Actively Recruiting

22

The Portland Hospital for Women and Children

London, England, United Kingdom, W1W 5AH

Actively Recruiting

23

Manchester University

Manchester, England, United Kingdom, M13 9WL

Actively Recruiting

24

Sheffield Children's NHS Foundation Trust

Sheffield, England, United Kingdom, S10 2TH

Actively Recruiting

25

Glasgow Clinical Research Facility, Queen Elizabeth University Hospital

Glasgow, Scotland, United Kingdom, G51 4TF

Actively Recruiting

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Research Team

Q

QED Therapeutics, Inc

CONTACT

How is the study designed?

Study Type

OBSERVATIONAL

Masking

N/A

Allocation

N/A

Model

N/A

Primary Purpose

N/A

Number of Arms

0

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Prospective Clinical Assessment Study in Children With Hypochondroplasia | DecenTrialz