Prospective Study of Multidisciplinary Follow-up After Transition Consultation for Adults with Esophageal Atresia

What this Trial Is About

This research focuses on young adults aged 18 to 30 with esophageal atresia, a condition studied through a multidisciplinary follow-up after a transitional consultation. The initiative aims to start adult medical, psychological, and social care, empower these individuals in managing their future health, and create personalized follow-up plans. This project is unique in addressing post-traumatic stress disorder PTSD in this population, with a 3-year analysis planned to evaluate its impact on quality of life. Participants will undergo a 3-year follow-up involving assessments of PTSD prevalence, anxiety and depression levels, quality of life, nutritional, gastrointestinal, and respiratory health. Evaluations include clinical history correlation with PTSD and thorough monitoring of somatic and psychosocial variables. The study is observational and does not involve experimental treatments, focusing on careful data collection and analysis. During the study, participants will complete questionnaires and undergo tests such as thoracic CT scans and respiratory function tests at the start and after 3 years. Researchers will track changes in weight, height, body mass index, and eating habits, alongside psychological assessments. The primary outcome is PTSD prevalence at the beginning, with secondary outcomes including anxiety, depression, quality of life, and physical health measures monitored over the study period.

Prospective Evaluation of the Results of Multidisciplinary Follow-up After a Transitional Consultation for Esophageal Atresia