ITANET Registry for Collecting Data on Gastro-Enteric-Pancreatic Neuroendocrine Tumors in Italy

What this Trial Is About

Researchers are collecting data to create an Italian database focused on gastro-entero-pancreatic neuroendocrine tumors GEP-NET. This observational study aims to gather information on how these tumors are diagnosed, treated, and monitored over time. The study continues previous efforts from an international database, ensuring important clinical details are not lost for patients in Italy. Participants data will be entered into a secured online database managed by the Italian Association Neuroendocrine Tumors ITANET. The data collection includes new diagnoses and follow-up visits, with retrospective data allowed for patients diagnosed within one year before consenting. Follow-up visits and treatments are based on individual patient needs, and data accuracy is carefully checked and validated by ITANET. During the study, patients will undergo regular clinical visits as part of their usual care. The data collected will include tumor classification, diagnostic tools used, treatment methods such as surgery or medication, and disease progression. The study tracks important outcomes like tumor incidence, location, diagnosis timing, and treatment types over a three-year period, with ongoing data updates planned annually.

Protocol ITANET - Registry