Actively Recruiting

Phase 3
Age: 6Years +
All Genders
NCT06336733

Randomized Controlled Trial in Patients on Long-term Colchicine With Colchicine-resistant Familial Mediterranean Fever (FMF) to Evaluate the Efficacy of On-demand Anakinra Treatment for Painful Attacks in Patients Who Refuse Continuous Daily Therapy

Led by Assistance Publique - Hôpitaux de Paris · Updated on 2025-06-25

50

Participants Needed

1

Research Sites

130 weeks

Total Duration

On this page

AI-Summary

What this Trial Is About

To evaluate the efficacy on clinical symptoms in case of FMF attack among FMF patients resistant to Colchicine of * on demand anakinra treatment (100 mg/d from the prodromal phase of the attack until 24 hours of remission (during 7 days maximum) associated with daily colchicine. * compared to analgesic associated with daily colchicine in patients refusing continuous anti-IL-1 treatment.

CONDITIONS

Official Title

Randomized Controlled Trial in Patients on Long-term Colchicine With Colchicine-resistant Familial Mediterranean Fever (FMF) to Evaluate the Efficacy of On-demand Anakinra Treatment for Painful Attacks in Patients Who Refuse Continuous Daily Therapy

Who Can Participate

Age: 6Years +
All Genders

Eligibility Criteria

Eligible

You may qualify if you...

  • Age 6 years or older with no upper age limit
  • Diagnosed with FMF according to Livneh criteria and confirmed by 2 specific MEFV mutations
  • Persistent FMF attacks despite maximum tolerated colchicine dose (one or more attacks per month over 3 months)
  • Experiencing FMF attacks defined by arthritis, chest pain, abdominal pain, myalgia, or erysipelas-like skin lesions lasting 1-4 days
  • Refusal of daily anakinra injections
  • Covered 100% by health insurance (ALD)
  • No biological inflammation between attacks
  • Provided written informed consent (patient or legal representative)
Not Eligible

You will not qualify if you...

  • Active tuberculosis or signs of latent tuberculosis
  • Infection requiring intravenous antibiotics within 2 weeks prior to enrollment
  • History of recurrent infections needing frequent antibiotics or multiple episodes of pneumonia or bacterial sinusitis
  • Allergy or hypersensitivity to anakinra or its components
  • Neutropenia (absolute neutrophil count less than 1.5 x 10^9/L)
  • Unable to provide informed consent
  • Receiving chronic anti IL1 biotherapy for at least 3 months
  • Pregnant, in labor, or nursing
  • In emergency situations or hospitalized without consent
  • No health insurance coverage
  • Contraindication to colchicine
  • Participation in another interventional clinical trial
  • Under legal protection such as guardianship, curatorship, or court protection
  • Deprived of liberty
  • Positive pregnancy test at screening
  • Evidence of active or latent tuberculosis by chest X-ray or quantiferon test

AI-Screening

AI-Powered Screening

Complete this quick 3-step screening to check your eligibility

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Trial Site Locations

Total: 1 location

1

Service de Médecine interne Hopital Tenon

Paris, France, 75020

Actively Recruiting

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Research Team

L

Léa SAVEY

CONTACT

S

Sophie Georgin-Lavialle, MD,PHD

CONTACT

How is the study designed?

Study Type

INTERVENTIONAL

Masking

NONE

Allocation

RANDOMIZED

Model

PARALLEL

Primary Purpose

TREATMENT

Number of Arms

2

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Randomized Controlled Trial in Patients on Long-term Colchicine With Colchicine-resistant Familial Mediterranean Fever (FMF) to Evaluate the Efficacy of On-demand Anakinra Treatment for Painful Attacks in Patients Who Refuse Continuous Daily Therapy | DecenTrialz