Actively Recruiting
Rare Disease Patient Registry & Natural History Study - Coordination of Rare Diseases at Sanford
Led by Sanford Health ยท Updated on 2025-05-29
20000
Participants Needed
2
Research Sites
4717 weeks
Total Duration
On this page
Sponsors
S
Sanford Health
Lead Sponsor
N
National Ataxia Foundation
Collaborating Sponsor
AI-Summary
What this Trial Is About
CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access. Visit sanfordresearch.org/CoRDS to enroll.
CONDITIONS
Official Title
Rare Disease Patient Registry & Natural History Study - Coordination of Rare Diseases at Sanford
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Diagnosis of a rare disease, a disease of unknown prevalence, undiagnosed, or being an unaffected carrier of a rare or uncommon disease
You will not qualify if you...
- Diagnosis of a disease which is not rare
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 2 locations
1
Sanford Health
Sioux Falls, South Dakota, United States, 57104
Actively Recruiting
2
Online Patient Enrollment System
Sydney, Australia
Actively Recruiting
Research Team
C
CoRDS Team
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
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