Actively Recruiting
Recruitment and Engagement in Care to Impact Practice Enhancement (RECIPE) for Sickle Cell Disease
Led by RTI International · Updated on 2025-06-22
500
Participants Needed
9
Research Sites
233 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
The goal of this observational study is to help us understand more about the best ways to help individuals living with Sickle Cell Disease (SCD) get the best care. The main question it aims to answer is: How to find individuals unaffiliated from SCD specialist care use three distinct pathways? Once unaffiliated individuals are found using the pathways, Investigators will employ linkage coordinators (trained staff) to engage these patients in care. Participants will be asked to fill out an assessment survey which will cover areas such as previous and current treatment, clinic and hospital experience, pain, and quality of life. Participants will also be given the option of participation in a 1-hour long interview how they feel about treatment for sickle cell disease including clinic experience, pain, and quality of life?
CONDITIONS
Official Title
Recruitment and Engagement in Care to Impact Practice Enhancement (RECIPE) for Sickle Cell Disease
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Persons must be �3e/= 18 years of age
- Persons must have confirmed SCD
- Persons not seen by a SCD specialist �3e 1 year +/- 3 months
- Literacy in English will be required of the consenting patient or parent/guardian
You will not qualify if you...
- Persons < 18 years of age
- Persons that are unable to provide informed consent and do not have a designated care-giver that can consent on his/her behalf
- Persons with sickle cell trait (as per hemoglobin electrophoresis)
- Persons seen by a SCD specialist < 1 year +/- 3 months
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 9 locations
1
University of Alabama, Birmingham (UAB)
Birmingham, Alabama, United States, 35233
Actively Recruiting
2
Phoenix Children's Hospital
Phoenix, Arizona, United States, 85016
Actively Recruiting
3
University of California, San Francisco (UCSF)
Oakland, California, United States, 94609
Actively Recruiting
4
Augusta University
Augusta, Georgia, United States, 30901
Actively Recruiting
5
University of Illinois
Chicago, Illinois, United States, 60612
Actively Recruiting
6
Cleveland Clinic
Cleveland, Ohio, United States, 44195
Actively Recruiting
7
University of Pennsylvania
Philadelphia, Pennsylvania, United States, 19104
Actively Recruiting
8
University of Tennessee at Memphis
Memphis, Tennessee, United States, 38163
Actively Recruiting
9
University of Texas at Houston
Houston, Texas, United States, 77030
Actively Recruiting
Research Team
L
Lisa A Cox, MS
CONTACT
S
Sara Jacobs, PhD
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
1
Not the Right Trial for You?
Explore thousands of other clinical trials that might be a better match.
Sign up to get personalized trial recommendations delivered to your inbox.
Already have an account? Log in here