Actively Recruiting
Register of Patients With Prader-Willi Syndrome
Led by University Hospital, Toulouse · Updated on 2024-02-20
500
Participants Needed
1
Research Sites
926 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
Prader-Willi Syndrome (PWS) is a rare syndrome with a prevalence of 15 to 20 000 at birth. PWS represents a large fraction of mental retardation syndromes due to a genetic cause and the most frequent cause of genetic obesity. The majority of the patients are seen by paediatricians. This syndrome is responsible for severe physical, psychological and social impairments. The diversity and the severity of the manifestations of this disease explain the requirement of multidisciplinary care which deserve specific evaluation. Today the follow-up and management of a great proportion of these patients are greatly insufficient if not absent. Teams strongly lack information on the natural history of this severe disease and on the factors involved in its evolution and the outcome of these patients throughout life. The present project is to implement a register in the whole country for children and adult patients
CONDITIONS
Official Title
Register of Patients With Prader-Willi Syndrome
Who Can Participate
Eligibility Criteria
You may qualify if you...
- All subjects with a Prader-Willi Syndrome
You will not qualify if you...
History of severe allergic reactions to study medication Currently pregnant or breastfeeding Recent participation in another clinical trial within the last 30 days Presence of uncontrolled medical conditions that could affect safety
AI-Screening
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Trial Site Locations
Total: 1 location
1
University Hospital of Children
Toulouse, France, 31059
Actively Recruiting
Research Team
T
TAUBER Maité, MD PhD
CONTACT
M
MOLINAS Catherine, CRA
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
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