Actively Recruiting
A Long-Term Observational Study Following Chinese Patients and Families with Cerebellar Ataxia
Led by Ning Wang, MD., PhD. · Updated on 2023-07-12
1500
Participants Needed
1
Research Sites
1043 weeks
Total Duration
AI-Summary
What this Trial Is About
Cerebellar ataxia is a condition that affects coordination, balance, walking, limb movements, and eye movements due to problems in the cerebellum. This study aims to understand the clinical and genetic features of cerebellar ataxia by creating a registered group of Chinese patients with this condition to follow over time. This observational study does not involve any treatment or intervention. It includes patients diagnosed with cerebellar ataxia by two neurologists, their relatives, and unrelated healthy individuals to serve as controls. Participants or their legal guardians must be willing and able to give informed consent. Participants will be followed up for up to 20 years to observe the occurrence of hereditary cerebellar ataxia. Researchers will collect clinical and genetic information during the study period. The study also tracks participant adherence and compliance with scheduled visits, with attention to those able to complete trial procedures and visit schedules.
CONDITIONS
Brief Title
A Registered Cohort Study on Cerebellar Ataxia in the Organization in South-East China for Cerebellar Ataxia Research (OSCCAR)
Research Team
S
Shi-Rui Gan, MD.Phd
Y
Yi Lin, MD.Phd
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