Actively Recruiting
A Registered Cohort Study on Cerebellar Ataxia
Led by Ning Wang, MD., PhD. · Updated on 2023-07-12
1500
Participants Needed
1
Research Sites
1043 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
Cerebellar ataxia is a condition that affects coordination, balance, walking, limb movements, and eye movements due to problems in the cerebellum. This study aims to understand the clinical and genetic features of cerebellar ataxia by creating a registered group of Chinese patients with this condition to follow over time. This observational study does not involve any treatment or intervention. It includes patients diagnosed with cerebellar ataxia by two neurologists, their relatives, and unrelated healthy individuals to serve as controls. Participants or their legal guardians must be willing and able to give informed consent. Participants will be followed up for up to 20 years to observe the occurrence of hereditary cerebellar ataxia. Researchers will collect clinical and genetic information during the study period. The study also tracks participant adherence and compliance with scheduled visits, with attention to those able to complete trial procedures and visit schedules.
CONDITIONS
Brief Title
A Registered Cohort Study on Cerebellar Ataxia in the Organization in South-East China for Cerebellar Ataxia Research (OSCCAR)
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Patients with cerebellar ataxia diagnosed by two neurologists
- Relatives of patients with cerebellar ataxia
- Unrelated healthy controls
- Participants or legal guardians willing and able to complete the informed consent process
You will not qualify if you...
- Participants unable to comply with trial procedures and visit schedule
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Your Study Journey
Duration - 2 to 4 weeks
Participants are screened for eligibility to participate in the trial.
1 visit (in-person)
Duration - Up to 20 years
Participants are observed over time to monitor the incidence of hereditary cerebellar ataxia.
Visits scheduled periodically over the course of the study
Trial Site Locations
Total: 1 location
1
Department of Neurology ,First Affiliated Hospital Fujian Medical University
Fuzhou, Fujian, China, 350005
Actively Recruiting
Research Team
S
Shi-Rui Gan, MD.Phd
Y
Yi Lin, MD.Phd
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
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