Actively Recruiting

All Genders
Healthy Volunteers
NCT04369209

A Registered Cohort Study on FSHD1

Led by Ning Wang, MD., PhD. · Updated on 2024-08-26

1000

Participants Needed

1

Research Sites

1613 weeks

Total Duration

On this page

AI-Summary

What this Trial Is About

The data to be collected is intended to help healthcare providers make important medical and financial decisions concerning FSHD1, through an enhanced understanding of the prevalence, progression and natural history of FSHD1.

CONDITIONS

Official Title

A Registered Cohort Study on FSHD1

Who Can Participate

All Genders
Healthy Volunteers

Eligibility Criteria

Eligible

You may qualify if you...

  • Male or female subjects of all ages at baseline
  • Subjects, with or without symptoms, with FSHD1 genetic confirmation through PFGE-based Southern blotting
  • Unrelated healthy controls
Not Eligible

You will not qualify if you...

  • Decline to participate
  • Other neuromuscular disease such as Limb-girdle muscular dystrophy or Myotonic dystrophy
  • Serious systemic illness such as heart, liver, kidney disease or major mental illness

AI-Screening

AI-Powered Screening

Complete this quick 3-step screening to check your eligibility

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Trial Site Locations

Total: 1 location

1

First Affiliated Hospital of Fujian Medical University

Fuzhou, Fujian, China, 350005

Actively Recruiting

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Research Team

N

Ning Wang

CONTACT

How is the study designed?

Study Type

OBSERVATIONAL

Masking

N/A

Allocation

N/A

Model

N/A

Primary Purpose

N/A

Number of Arms

0

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