Actively Recruiting

All Genders
Healthy Volunteers
NCT03169010

Registration Study for Rare Type of Pulmonary Hypertension

Led by China National Center for Cardiovascular Diseases · Updated on 2023-10-02

2000

Participants Needed

1

Research Sites

1234 weeks

Total Duration

On this page

Sponsors

C

China National Center for Cardiovascular Diseases

Lead Sponsor

P

Peking Union Medical College Hospital

Collaborating Sponsor

AI-Summary

What this Trial Is About

The knowledge on the rare type of pulmonary hypertension which can not be explained by left heart disease, respiratory disease or congenital heart disease is very limited. Investigators aim to setup a national registration study for the rare type of pulmonary hypertension, to understand the natural history, survival, progression, genetic and environmental contributions to disease.

CONDITIONS

Official Title

Registration Study for Rare Type of Pulmonary Hypertension

Who Can Participate

All Genders
Healthy Volunteers

Eligibility Criteria

Eligible

You may qualify if you...

  • Participant is willing and able to give informed consent for participation in the study.
  • Diagnosed with idiopathic pulmonary artery hypertension, hereditary pulmonary artery hypertension, hereditary hemorrhagic telangiectasia associated pulmonary artery hypertension, pulmonary veno-occlusive disease, pulmonary capillary hemangiomatosis associated pulmonary artery hypertension, cavernous transformation of portal vein associated pulmonary artery hypertension, special type of congenital heart disease associated pulmonary artery hypertension, or chronic thromboembolism pulmonary hypertension.
  • Underwent right heart catheterization and diagnosed according to guidelines.
  • For controls: participant is willing and able to give informed consent and self-reports as healthy.
Not Eligible

You will not qualify if you...

  • Unwilling or unable to provide written consent for participation in the study.
  • Not diagnosed with the rare type of pulmonary artery hypertension.

AI-Screening

AI-Powered Screening

Complete this quick 3-step screening to check your eligibility

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Trial Site Locations

Total: 1 location

1

Chinese Academy of Medical Sciences Fuwai Hospital and Peking Union Medical College Hospital

Beijing, Beijing Municipality, China, 100037

Actively Recruiting

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Research Team

X

Xi-Qi XU, MD. PhD.

CONTACT

X

Xin JIANG, MD. PhD.

CONTACT

How is the study designed?

Study Type

OBSERVATIONAL

Masking

N/A

Allocation

N/A

Model

N/A

Primary Purpose

N/A

Number of Arms

8

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