Actively Recruiting
Registre HEAR, Healthcare European Amyloidosis Registry
Led by Saving Lives Matters · Updated on 2021-11-01
5000
Participants Needed
1
Research Sites
339 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
This is a non-interventional, prospective, retrospective, non-comparative, multi-center study. In order not to interfere with patient management, the study is observational. Thus, no follow-up visit is imposed. The data collection will be limited to the data related to the management of the patients included throughout their follow-up. This study is intended for all patients with a confirmed or suspected diagnosis of cardiac amyloidosis. Three cohorts will be identified: the HEAR (Healthcare European Amyloidosis Registry)-Retrospective Cohort, the HEAR(Healthcare European Amyloidosis Registry)-Retrospective-Prospective Cohort and the HEAR (Healthcare European Amyloidosis Registry)-Prospective Cohort.
CONDITIONS
Official Title
Registre HEAR, Healthcare European Amyloidosis Registry
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Must be an adult patient
- Protected adult patients under guardianship or curatorship
- For the prospective cohort: patients referred or previously referred to a participating center for suspected amyloidosis and who have signed the information note
- For the retro-prospective cohort: patients already followed in the center with a confirmed amyloidosis diagnosis and who have signed the information note
- For the retrospective cohort: deceased patients followed in the center with confirmed amyloidosis diagnosis
You will not qualify if you...
- Patient has refused to participate in the study
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
Hôpital Henri Mondor
Créteil, France, 94000
Actively Recruiting
Research Team
M
Mounira Kharoubi
CONTACT
R
Rébecca Gene
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
3
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