Actively Recruiting
Registry of Li Fraumeni and Li Fraumeni Like Syndromes
Led by Istituto Ortopedico Rizzoli · Updated on 2025-11-20
200
Participants Needed
2
Research Sites
1304 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
ReLF is a retrospective and prospective registry, finalized for care and research purposes. It is articulated in main sections - strongly related and mutually dependent on each other - corresponding to different data domains: personal information, clinical data, genetic data, genealogical data, surgeries, etc. This approach has been developed to corroborate and integrate data from different resources and aspects of the diseases and to correlate genetic background and phenotypic outcomes, in order to better investigate diseases pathophysiology. Due to legal requirements, institutional directives and organizational issues, we are unable to include individuals residing outside Italy in the registry at this time. We are currently engaged in the preparation of a recruitment process for individuals residing outside Italy.
CONDITIONS
Official Title
Registry of Li Fraumeni and Li Fraumeni Like Syndromes
Who Can Participate
Eligibility Criteria
You may qualify if you...
- All patients affected by Li Fraumeni or Li Fraumeni Like syndromes
You will not qualify if you...
- Any condition unrelated to Li Fraumeni or Li Fraumeni Like syndromes
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 2 locations
1
Irccs Istituto Ortopedico Rizzoli
Bologna, Emilia-Romagna, Italy, 40136
Actively Recruiting
2
IRCCS Istituto Ortopedico Rizzoli
Bologna, Emilia-Romagna, Italy, 40136
Enrolling by Invitation
Research Team
M
Marina Mordenti, PhD
CONTACT
M
Marcella Lanza, PhD
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
1
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