Actively Recruiting
Registry of Ollier Disease and Maffucci Syndrome
Led by Luca Sangiorgi · Updated on 2025-11-20
400
Participants Needed
1
Research Sites
780 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
REM is a retrospective and prospective registry, finalized to care and research. It is articulated in main sections - strongly related and mutually dependent on each other - corresponding to different data domains: personal information, clinical data, genetic data, genealogical data, surgeries, etc.. This approach has been individuated in order to corroborate and integrate data from different resources and aspects of the diseases and to correlate genetic background and phenotypic outcomes, in order to better investigate diseases pathophysiology. Due to legal requirements, institutional directives and organizational issues, we are unable to include individuals residing outside Italy in the registry at this time. We are currently engaged in the preparation of a recruitment process for individuals residing outside Italy.
CONDITIONS
Official Title
Registry of Ollier Disease and Maffucci Syndrome
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Patients affected by Ollier Disease and Maffucci Syndrome
You will not qualify if you...
- Any condition unrelated to Ollier Disease and/or Maffucci Syndrome
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
Irccs Istituto Ortopedico Rizzoli
Bologna, Emilia-Romagna, Italy, 40136
Actively Recruiting
Research Team
M
Marina Mordenti, PhD
CONTACT
M
Marcella Lanza, PhD
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
1
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