Actively Recruiting
Registry for Patients With Lipodystrophy
Led by University of Ulm · Updated on 2025-12-02
5000
Participants Needed
28
Research Sites
2611 weeks
Total Duration
On this page
Sponsors
U
University of Ulm
Lead Sponsor
S
Sorbonne University
Collaborating Sponsor
AI-Summary
What this Trial Is About
Given the lack of knowledge on lipodystrophies, the medical and social responsibility for the persons affected by it calls for the monitoring of the progression over long periods of time. Sensible clinical and basic research into rare diseases such as lipodystrophy is only possible in multi-location networks with sufficient case numbers. Also, reliable information on the incidence of certain manifestation patterns, health status, etc. is of utmost importance for health care and health policy in this rare disease. Therefore, the European Consortium of Lipodystrophies (ECLip), an association of European experts on lipodystrophy, has launched a registry (OSSE) for lipodystrophies which is committed to help to improve the research conditions by consolidating this kind of information in a registry.
CONDITIONS
Official Title
Registry for Patients With Lipodystrophy
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Diagnosis of lipodystrophy
You will not qualify if you...
- Lipodystrophy caused by anti-retroviral drugs
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 28 locations
1
Medical University of Vienna
Vienna, Austria
Actively Recruiting
2
Lille University
Lille, France
Actively Recruiting
3
AP-HP Nord Université de Paris, Hôpital Universitaire Robert-Debré
Paris, France
Actively Recruiting
4
Pierre et Marie Curie School of Medicine, Sorbonne University
Paris, France
Actively Recruiting
5
Kinder-und Jugendkrankenhaus AUF DER BULT
Hanover, Germany
Actively Recruiting
6
Department of Internal Medicine (Endocrinology and Nephrology), University of Leipzig
Leipzig, Germany
Actively Recruiting
7
Med. Klinik B für Gastroenterologie und Hepatologie, Universitätsklinikum Münster
Münster, Germany, 48149
Actively Recruiting
8
Dept for Pediatrics and Adolescent Medicine, University of Ulm: Interdisciplinary obesity clinic
Ulm, Germany, 89075
Actively Recruiting
9
National and Kapodistrian University of Athens
Athens, Greece
Actively Recruiting
10
Second Department of Internal Medicine, Medical School, National and Kapodistrian University of Athens, Attikon University Hospital
Athens, Greece
Actively Recruiting
11
University of Szeged, Department of Internal Medicine
Szeged, Hungary
Actively Recruiting
12
Endocrinology Unit, Department of Clinical and Medical science, S. Orsola-Malpighi Hospital , University of Bologna
Bologna, Italy
Actively Recruiting
13
Policlinic University Hospital of Milan
Milan, Italy
Actively Recruiting
14
Universita del piemonte Orientale
Novara, Italy
Actively Recruiting
15
Palermo University
Palermo, Italy
Actively Recruiting
16
Endocrine Unit of University Hospital of Pisa
Pisa, Italy
Actively Recruiting
17
Tor Vergata University - Policlinico of Tor Vergata
Roma, Italy
Actively Recruiting
18
Academic Medical Center, University of Amsterdam
Amsterdam, Netherlands
Actively Recruiting
19
Abel Salazar Biomedical Sciences Institute - University of Porto
Porto, Portugal
Actively Recruiting
20
C. I. Parhon National Institute of Endocrinology, Bucharest, Romania
Bucharest, Romania
Actively Recruiting
21
Endocrinology Research Centre
Moscow, Russia
Actively Recruiting
22
University Medical Center Ljubljana - Clinical Institute of Medical Genetics
Ljubljana, Slovenia
Actively Recruiting
23
Santiago de Compostela University
Santiago de Compostela, Spain
Actively Recruiting
24
Stoffwechselzentrum friendlydocs
Sankt Gallen, Switzerland
Actively Recruiting
25
National Taiwan University Hospital
Taipei, Taiwan
Actively Recruiting
26
Marmara University, Pediatric Endocrinology and Diabetes
Istanbul, Turkey (Türkiye)
Actively Recruiting
27
Dokuz Eylul University School of Medicine
Izmir, Turkey (Türkiye)
Actively Recruiting
28
University of Cambridge Metabolic Research Laboratories
Cambridge, United Kingdom
Actively Recruiting
Research Team
J
Julia von Schnurbein, Dr.
CONTACT
M
Martin Wabitsch, Prof. Dr.
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
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