Actively Recruiting
Registry Platform Myelofibrosis and Anemia
Led by iOMEDICO AG · Updated on 2026-03-30
200
Participants Needed
1
Research Sites
288 weeks
Total Duration
On this page
Sponsors
I
iOMEDICO AG
Lead Sponsor
G
German Study Group for Myeloproliferative Neoplasms (GSG-MPN)
Collaborating Sponsor
AI-Summary
What this Trial Is About
The purpose of the project is to set up a national, prospective, longitudinal, multicenter cohort study, a tumor registry platform, to document uniform data on characteristics, molecular diagnostics, treatment and course of disease and to collect patient-reported outcomes for patients with primary and secondary myelofibrosis and anemia in Germany.
CONDITIONS
Official Title
Registry Platform Myelofibrosis and Anemia
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Confirmed diagnosis of primary or secondary myelofibrosis (including post-polycythemia vera or post-essential thrombocythemia) according to WHO-2017, ICC-2022, WHO-2022, or IWG-MRT criteria
- Diagnosis of anemia at enrollment as assessed by the local physician
- Starting first or subsequent systemic treatment for myelofibrosis
- Informed consent and registration for the GSG-MPN Bioregistry
- Willingness and ability to participate in patient-reported outcome assessments
- Signed and dated informed consent form for RHODOLITE within six weeks after starting systemic treatment
You will not qualify if you...
- No systemic therapy for diagnosed primary or secondary myelofibrosis
- Planned allogenic stem cell transplantation (allo-SCT)
- Active participation in an interventional clinical trial
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
Multiple sites all over Germany
Multiple Locations, Germany
Actively Recruiting
Research Team
I
iOMEDICO AG
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
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