Actively Recruiting
Registry Study of Assistive Devices, Medicines and Healthcare Measures in ALS, SMA and Other Neurological Diseases.
Led by Ambulanzpartner Soziotechnologie APST GmbH · Updated on 2025-01-29
25000
Participants Needed
16
Research Sites
709 weeks
Total Duration
On this page
Sponsors
A
Ambulanzpartner Soziotechnologie APST GmbH
Lead Sponsor
C
Charite University, Berlin, Germany
Collaborating Sponsor
AI-Summary
What this Trial Is About
This registry study aims to collect data on the provision of assistive devices, medicines, and other healthcare measures, such as ventilation therapy and nutrition support, in patients with Amyotrophic lateral sclerosis (ALS), Spinal muscular atrophy (SMA) and other neurological disorders. The data collected should describe the clinical practice, meaning real-world evidence and patient-reported outcomes.
CONDITIONS
Official Title
Registry Study of Assistive Devices, Medicines and Healthcare Measures in ALS, SMA and Other Neurological Diseases.
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Diagnosis of a chronic neurological disease
You will not qualify if you...
- Lack of cooperation and unwillingness to store and share medical data collected in the registry study
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 16 locations
1
Christoph Münch
Berlin, Germany, 13353
Actively Recruiting
2
Neurologische Klinik und Poliklinik, Universitätsklinikum Bergmannsheil
Bochum, Germany
Actively Recruiting
3
Klinik für Neurodegenrative Erkrankungen und Gerontopsychiatrie, ALS-Ambulanz und Huntington Ambulanz, Universitätsklinikum
Bonn, Germany
Actively Recruiting
4
Klinik und Poliklinik für Neurologie, Medizinische Fakultät Carl Gustav Carus, Technischen Universität Dresden
Dresden, Germany
Actively Recruiting
5
Neurologische Klinik, ALS-Ambulanz, Alfried Krupp Krankenhaus Rüttenscheid, Essen
Essen, Germany
Actively Recruiting
6
Klinik für Neurologie, Universitätsmedizin, Georg-August-Universität Göttingen
Göttingen, Germany
Actively Recruiting
7
ALS- und Muskelambulanz, Medizinische Hochschule Hannover
Hanover, Germany
Actively Recruiting
8
Neurologie und Poliklinik, Universitätsklinikum
Heidelberg, Germany
Actively Recruiting
9
Ambulanz für Neuromuskuläre und Motoneuron-Erkrankungen, Universitätsklinikum Jena
Jena, Germany
Actively Recruiting
10
Klinik und Poliklinik für Neurologie
Leipzig, Germany
Actively Recruiting
11
Klinik für Neuroogie-Präzisionsneurologie, Universitätsklinikum Schleswig-Holstein, Universität zu Lübeck
Lübeck, Germany
Actively Recruiting
12
Neurologisches Klinik, Ambulanz für Motoneuronerkrankungen und ALS, Diakonissenkrankenhaus
Mannheim, Germany
Actively Recruiting
13
Universitätklinikum
Mannheim, Germany
Actively Recruiting
14
Klinik und Poliklinik für Neurologie, Klinikum rechts der Isar der Technischen Universität München
München, Germany
Actively Recruiting
15
Klinik für Schlafmedizin und Neuromuskuläre Erkrankungen, Westfälische Willhelms-Universität Münster
Münster, Germany
Actively Recruiting
16
Klinik für Innere Medizin, Neurologie, UKM Marienhospital Steinfurt
Steinfurt, Germany
Actively Recruiting
Research Team
T
Thomas Meyer, Prof. Dr.
CONTACT
S
Senthil Kumar Subramanian, Dr.
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
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