Actively Recruiting
Registry Study on Respiratory Monogenic Diseases in Chinese Children
Led by Kunling Shen · Updated on 2018-05-18
200
Participants Needed
1
Research Sites
730 weeks
Total Duration
On this page
Sponsors
K
Kunling Shen
Lead Sponsor
C
Capital Institute of Pediatrics, China
Collaborating Sponsor
AI-Summary
What this Trial Is About
This study is a multicenter, prospective cohort study of patients diagnosed with respiratory monogenic diseases, the clinical information of recruited patients, including clinical manifestations, lung function, chest imaging, quality of life and other indicators, will be followed for 5 years.
CONDITIONS
Official Title
Registry Study on Respiratory Monogenic Diseases in Chinese Children
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Age: 0-18 years, male and female.
- Any organ system symptoms consistent with the diagnostic points of respiratory monogenic diseases.
- Agree to retain specimens related to disease research and agree to store the specimens in the sample bank.
- Willing and able to cooperate with long-term follow-up.
- The guardian has a full understanding of the study purpose, understands the clinical research program, and voluntarily consents to participation.
You will not qualify if you...
- Unable to provide complete medical records or current condition does not allow diagnosis process.
- Does not agree to participate in the study.
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
Beijing Children's hospital
Beijing, Beijing Municipality, China, 100045
Actively Recruiting
Research Team
K
Kunling Shen, MD,PhD
CONTACT
B
Baoping Xu, MD,PhD
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
1
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