Actively Recruiting

Age: 18Years +
All Genders
ID05974696

A Research Registry on Aggressive PitNETs

Led by Hospices Civils de Lyon · Updated on 2023-08-08

200

Participants Needed

1

Research Sites

N/A

Total Duration

On this page

AI-Summary

What this Trial Is About

Researchers are studying aggressive pituitary tumors through a national research registry called HYPOcare, which gathers patient information from a multidisciplinary consultation meeting. This meeting brings together experts from across the country to help guide patient care and collect one of the largest cohorts of patients with aggressive pituitary tumors both nationally and internationally. Currently, the data is used only for clinical management and not for research purposes. The study involves adult patients with pituitary tumors whose medical files have been reviewed by the HYPOcare consultation meeting. There is a single group of participants, and the study is observational, meaning no new treatments or interventions are given as part of the trial. The registry collects clinical data to support research on the characteristics of aggressive pituitary tumors. Participants provide their medical information for analysis, and researchers will study the aggressiveness of the tumors using transcriptome analysis over a three-year period. No experimental treatments are administered, and no direct patient visits or interventions are required as part of this observational research. The study aims to improve understanding and future management of aggressive pituitary tumors through data collection and analysis.

CONDITIONS

Brief Title

A Research Registry on Aggressive PitNETs

Who Can Participate

Age: 18Years +
All Genders

Eligibility Criteria

Eligible

You may qualify if you...

  • Patients with a diagnosis of pituitary tumour
  • Patients whose file has been presented to the national HYPOcare RCP
Not Eligible

You will not qualify if you...

  • Patients objecting to participating in this research

AI-Screening

AI-Powered Screening

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Your Study Journey

Screening

Duration - 2 to 4 weeks

Participants are screened for eligibility to participate in the trial.

1 visit (in-person)

Long-term Monitoring

Duration - Up to 3 years

Participants with pituitary tumours are observed to characterize tumor aggressiveness over time through transcriptome analysis.

Visits scheduled as per clinical care and research assessments

Trial Site Locations

Total: 1 location

1

Hospices Civils de Lyon - Groupement Hospitalier Est

Lyon, France, 69003

Actively Recruiting

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How is the study designed?

Study Type

OBSERVATIONAL

Masking

N/A

Allocation

N/A

Model

N/A

Primary Purpose

N/A

Number of Arms

1

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