Actively Recruiting

Phase Not Applicable
Age: 0 - 17Years
All Genders
ID06831552

A Randomized Phase II Trial of the Resource Intervention to Support Equity (RISE) Added to Usual Supportive Care for Children With Newly Diagnosed High-Risk Neuroblastoma

Led by Dana-Farber Cancer Institute · Updated on 2026-02-10

84

Participants Needed

6

Research Sites

N/A

Total Duration

On this page

AI-Summary

What this Trial Is About

Researchers are studying whether adding the Pediatric Resource Intervention to Support Equity (Pediatric RISE), a new supportive care program focused on income-poverty, can improve outcomes for low-income children with newly diagnosed high-risk neuroblastoma. This randomized Phase II trial compares usual supportive care alone to usual care plus the Pediatric RISE intervention to see if it helps families facing financial hardship during cancer treatment. Participants will be randomly assigned to one of two groups for six months: usual supportive care alone or usual care plus Pediatric RISE. Pediatric RISE includes twice-monthly cash assistance delivered via debit card or electronic payment, benefits counseling through video calls to discuss potential loss of means-tested benefits, and ongoing support. Usual supportive care involves access to social workers, resource specialists, and psychosocial oncology teams. Both groups complete surveys at orientation, three months, and six months. During the study, parents or guardians will attend orientation visits either in person, by phone, or virtually, and complete surveys to track financial hardship, psychological distress, and cognitive outcomes. Researchers will measure changes in household material hardship scores from baseline to six months as the primary outcome. The study is expected to enroll about 84 participants and last approximately six months per participant, with ongoing monitoring of supportive care impact on families.

CONDITIONS

Brief Title

Resource Intervention to Support Equity (RISE) in High-Risk Neuroblastoma

Who Can Participate

Age: 0 - 17Years
All Genders

Eligibility Criteria

Eligible

You may qualify if you...

  • Child diagnosed with high-risk neuroblastoma
  • Child aged 0 to 17 years at consent
  • Child has started cancer treatment but not yet begun Induction Cycle 3
  • Parent or guardian reports low family income (less than 200% Federal Poverty Level)
  • Family resides in MA, PA, IL, CA, WA, CT, GA, WI, or OH
  • Child receiving treatment at study site with established care
  • Participation allowed regardless of language spoken
  • Co-enrollment on ANBL2131 or standard care therapy allowed
Not Eligible

You will not qualify if you...

  • Foreign national family receiving care as an Embassy-pay patient
  • Child or household member currently receiving Supplemental Security Income (SSI) benefits

AI-Screening

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Your Study Journey

Screening

Duration - 2 to 4 weeks

Participants are screened for eligibility to participate in the trial.

1 visit (in-person or virtual)

Orientation and Enrollment

Duration - 1 day

Participants attend an orientation visit to complete surveys and be randomized to one of two groups for supportive care.

1 orientation visit (in-person, phone, or virtual)

Outpatient Treatment

Duration - 6 months

Participants receive either usual supportive care or the RISE intervention which includes cash assistance and benefits counseling, along with usual supportive care.

Twice monthly meetings or contacts for cash disbursement and counseling for 6 months; surveys at 3 months and 6 months

Trial Site Locations

Total: 6 locations

1

Connecticut Children's Medical Center

Hartford, Connecticut, United States, 06106

Actively Recruiting

2

Children's Healthcare of Atlanta

Atlanta, Georgia, United States, 30329

Actively Recruiting

3

Dana-Farber Cancer Institute

Boston, Massachusetts, United States, 03079

Actively Recruiting

4

Children's Hospital of Philadelphia

Philadelphia, Pennsylvania, United States, 19104

Actively Recruiting

5

University of Texas Southwestern Medical Center

Dallas, Texas, United States, 75390

Actively Recruiting

6

Seattle Children's Hospital

Seattle, Washington, United States, 98105

Actively Recruiting

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Research Team

K

Kira Bona, MD, MPH

How is the study designed?

Study Type

INTERVENTIONAL

Masking

NONE

Allocation

RANDOMIZED

Model

PARALLEL

Primary Purpose

SUPPORTIVE_CARE

Number of Arms

2

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