Actively Recruiting
Revealing Information Genuinely & Honestly Across Time - Communication Preferences Visit
Led by St. Jude Children's Research Hospital · Updated on 2026-05-06
85
Participants Needed
1
Research Sites
124 weeks
Total Duration
On this page
Sponsors
S
St. Jude Children's Research Hospital
Lead Sponsor
N
National Cancer Institute (NCI)
Collaborating Sponsor
AI-Summary
What this Trial Is About
The purpose of this research study is to obtain insights and feedback from patients and parents about a new approach to support conversations about how cancer may affect one's future life and quality of life (i.e., prognostic communication). This study involves creating a personalized approach to discussing prognosis. Primary Objectives * To evaluate the feasibility of implementing the RIGHTimeCPV intervention among pediatric oncology patients, caregivers, and clinicians (referred to herein as "shareholders"). * To assess the acceptability of the intervention across the shareholder groups. Secondary Objectives * To explore the potential impact of the RIGHTimeCPV intervention on communication quality, concordance in prognostic understanding, and therapeutic alliance between patients/families and multidisciplinary clinicians. * To explore whether the practice of eliciting, sharing, and honoring individualized communication preferences is sustained by clinicians after participation in the RIGHTimeCPV intervention.
CONDITIONS
Official Title
Revealing Information Genuinely & Honestly Across Time - Communication Preferences Visit
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Patients aged 12-25 years diagnosed with poor prognosis cancer, defined by a pediatric oncologist as having 50% or less chance of overall survival
- Patients anticipated to have one or more disease re-evaluation visits in the next six months
- Patients not expected to approach end of life within the next three months
- Parents or caregivers aged 18 years or older or legally emancipated of patients with poor prognosis cancer
- Pediatric oncologists treating eligible patients at St. Jude Children's Research Hospital or its affiliate sites
- Multidisciplinary clinicians from psychosocial or nursing care teams identified by participants as communication preferences companions (CPCs)
You will not qualify if you...
- Does not meet the stated inclusion criteria
AI-Screening
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Trial Site Locations
Total: 1 location
1
St. Jude Children's Research Hospital
Memphis, Tennessee, United States, 38105
Actively Recruiting
Research Team
E
Erica C. Kaye, MD, MPH
CONTACT
How is the study designed?
Study Type
INTERVENTIONAL
Masking
NONE
Allocation
NON_RANDOMIZED
Model
PARALLEL
Primary Purpose
OTHER
Number of Arms
3
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