Actively Recruiting
Risk Factors for Sudden Unexplained Death in Epilepsy
Led by NYU Langone Health · Updated on 2025-07-30
800
Participants Needed
1
Research Sites
795 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
The main purpose of this study is to develop a North American registry for SUDEP cases; requesting family members of epilepsy patients who died suddenly of unclear causes (SUDEP) to contact the study team. The family members who decide to participate in the study will be asked to complete a brief telephone interview about their loved one's epilepsy and seizure history and the circumstances of his or her death. If the death has occurred within the past 24 hours, and the family is willing to consider donating tissue to the study, the subject will be transferred to the Autism Tissue Program, and the remainder of the phone interview will be conducted at a later time. In addition to the phone interview, the family will be asked to provide access to the deceased's medical records. Any costs involved in obtaining medical records will be covered by the study, and all medical information will remain completely confidential.
CONDITIONS
Official Title
Risk Factors for Sudden Unexplained Death in Epilepsy
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Subjects diagnosed with epilepsy whose cause of death was sudden and unexplained, with families willing to participate
- Patients diagnosed with epilepsy currently under the care of the NYU Comprehensive Epilepsy Center who are willing and able to participate
You will not qualify if you...
- Not explicitly provided in the source
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
NYU Comprehensive Epilepsy Center
New York, New York, United States, 10016
Actively Recruiting
Research Team
J
Juliana Laze
CONTACT
M
Marlene Cosme
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
2
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