Actively Recruiting

Phase 1
Age: 18Years - 70Years
All Genders
ID04097561

Safety Evaluation of Belimumab in People With Idiopathic CD4 Lymphopenia and Autoantibodies (Phoebe)

Led by National Institute of Allergy and Infectious Diseases (NIAID) ยท Updated on 2026-04-20

20

Participants Needed

1

Research Sites

N/A

Total Duration

On this page

AI-Summary

What this Trial Is About

Researchers are studying idiopathic CD4 lymphopenia (ICL), a condition where people have persistently low levels of CD4 white blood cells, which help fight infections. This condition can be linked with autoimmunity, infections, and certain cancers, but its cause is unclear and no approved treatments exist. The study aims to evaluate the safety of belimumab, a drug approved for lupus that targets certain immune cells, to understand its effects in people with ICL who have autoantibodies. Participants will receive belimumab through intravenous infusions over about six months. The treatment schedule includes 3 doses every 2 weeks followed by 5 doses every 4 weeks. Before and during treatment, participants will have medical exams, blood and urine tests, and may undergo leukapheresis to collect white blood cells. After the treatment period, they will have follow-up visits at 8, 16, and 24 weeks to monitor health and immune function. Throughout the study, participants will be closely monitored with physical exams, laboratory tests, and questionnaires about mental health. Researchers will track adverse events related to belimumab and measure immune cell counts and autoantibody levels. After completing this study, participants will continue follow-up in a related NIH protocol. The entire study duration includes treatment and extended observation to assess safety and immune changes.

CONDITIONS

Brief Title

Safety of Belimumab in People With Idiopathic CD4 Lymphopenia and Autoantibodies (Phoebe)

Who Can Participate

Age: 18Years - 70Years
All Genders

Eligibility Criteria

Eligible

You may qualify if you...

  • Aged 18 to 70 years
  • Enrolled in study 09-I-0102
  • Documented diagnosis of idiopathic CD4 lymphopenia with CD4 count below 300 cells/microliter on at least two measurements 6 weeks apart and within the past 90 days
  • Evidence of autoantibody positivity such as ANA or antilymphocyte antibodies
  • Female participants of childbearing potential must agree to use adequate contraception from day 0 until 4 months after the last belimumab dose
  • Able to give informed consent
  • Willing to allow samples to be stored for future research
Not Eligible

You will not qualify if you...

  • Prior receipt of belimumab, except for limited prior doses with re-enrollment conditions
  • Allergy to any component of belimumab
  • HIV infection or other recognized immune deficiency
  • Current moderate or severe acute illness or progressive serious infection related to ICL
  • Untreated hepatitis B or C
  • Active tuberculosis infection
  • Serum creatinine greater than 1.5 times the upper limit of normal
  • Hemoglobin less than 8 g/dL
  • Elevated liver enzymes above twice the upper limit of normal
  • Serum IgG less than 400 mg/L
  • Current use of systemic glucocorticosteroids except nasal spray, inhaler, or topical steroids
  • Recent cancer diagnosis or autoimmune treatment requiring chemotherapy, immunomodulators, or radiation within past 6 months
  • Severe depression
  • Recent infections requiring new medications within past 60 days
  • Receipt of any vaccination within past 30 days
  • Pregnant or breastfeeding
  • Behavioral or substance use issues that affect study participation
  • Concomitant diagnosis of SLE is allowed if criteria met without immunosuppressive treatments affecting lymphopenia

AI-Screening

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Your Study Journey

Screening

Duration - 2 to 4 weeks

Participants are screened for eligibility to participate in the trial.

1 visit (in-person)

Treatment

Duration - 6 months

Participants receive belimumab 10 mg/kg by intravenous infusion following the schedule approved for systemic lupus erythematosus: doses at study entry, 2 weeks, 4 weeks, then monthly for a total of 8 doses over 6 months. Clinical safety evaluations with immunologic and serologic testing are performed at all study visits.

8 infusion visits over 6 months

Follow-up

Duration - 6 months

Participants are followed for an additional 6 months after completing belimumab treatment to monitor safety and immunologic status with ongoing clinical and laboratory evaluations.

3 visits approximately every 2 months

Trial Site Locations

Total: 1 location

1

National Institutes of Health Clinical Center

Bethesda, Maryland, United States, 20892

Actively Recruiting

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Research Team

I

Irini Sereti, M.D.

How is the study designed?

Study Type

INTERVENTIONAL

Masking

NONE

Allocation

NA

Model

SINGLE_GROUP

Primary Purpose

TREATMENT

Number of Arms

1

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