Actively Recruiting

Phase 2
Phase 3
Age: 6Years - 45Years
All Genders
NCT05004129

Safety and Efficacy of Tideglusib in Congenital or Childhood Onset Myotonic Dystrophy

Led by AMO Pharma Limited · Updated on 2025-05-28

76

Participants Needed

14

Research Sites

279 weeks

Total Duration

On this page

AI-Summary

What this Trial Is About

This is an open-label phase 2/3 study for individuals with Congenital Myotonic Dystrophy (Congenital DM1) who participated in the preceding AMO-02-MD-2-003 study or individuals with either Congenital or Childhood Onset DM1 who are treatment naïve.

CONDITIONS

Official Title

Safety and Efficacy of Tideglusib in Congenital or Childhood Onset Myotonic Dystrophy

Who Can Participate

Age: 6Years - 45Years
All Genders

Eligibility Criteria

Eligible

You may qualify if you...

  • Diagnosis of Congenital or Childhood Onset Myotonic Dystrophy confirmed by genetic testing
  • Male or female aged 6 to 45 years at screening
  • Clinical Global Impression - Severity (CGI-S) score of 3 or greater at screening
  • Written voluntary informed consent obtained; assent from participant if required
  • Caregiver willing and able to support participation throughout the study
  • Willing and able to follow the required food intake restrictions as per protocol
  • For those entering after completing prior AMO-02-MD-2-003 study: must have completed that study through visit 11
Not Eligible

You will not qualify if you...

  • Body mass index (BMI) less than 13.5 kg/m2 or greater than 40 kg/m2
  • New or changed medications or therapies within 4 weeks before eligibility/baseline visit
  • Use of strong CYP3A4 inhibitors within 4 weeks before eligibility/baseline visit
  • Concurrent use of drugs metabolized by CYP3A4 with narrow therapeutic windows
  • Participation in another investigational drug clinical trial in the last 6 months (except prior AMO-02-MD-2-003 study)
  • Existing or past medical conditions (neurological, cardiovascular, renal, hepatic, gastrointestinal, endocrine, or respiratory diseases) that may affect study results
  • Allergy or hypersensitivity to tideglusib or any components including strawberry allergy

AI-Screening

AI-Powered Screening

Complete this quick 3-step screening to check your eligibility

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Trial Site Locations

Total: 14 locations

1

Arkansas Children's Hospital

Little Rock, Arkansas, United States, 72202

Actively Recruiting

2

University of California, Los Angeles (UCLA)

Los Angeles, California, United States, 90095

Enrolling by Invitation

3

Stanford University

Palo Alto, California, United States, 94304

Enrolling by Invitation

4

Lurie's Children's Hospital

Chicago, Illinois, United States, 60611

Actively Recruiting

5

University of Iowa Hospitals and Clinics

Iowa City, Iowa, United States, 52242

Actively Recruiting

6

University of Rochester - Medical Center

Rochester, New York, United States, 14642

Actively Recruiting

7

University of Pittsburgh Medical Center

Pittsburgh, Pennsylvania, United States, 15213

Actively Recruiting

8

University of Utah Clinical Neurosciences Center

Salt Lake City, Utah, United States, 84132

Actively Recruiting

9

Children's Hospital of The King's Daughters

Norfolk, Virginia, United States, 23507

Withdrawn

10

Virginia Commonwealth University-Department of Neurology - Muscular Dystrophy Translational Research Program

Richmond, Virginia, United States, 23219

Completed

11

The Bright Alliance

Randwick, New South Wales, Australia, 2031

Actively Recruiting

12

Children's Hospital London Health Sciences Centre (LHSC)

London, Ontario, Canada, N6A 4G5

Enrolling by Invitation

13

Children's Hospital of Eastern Ontario

Ottawa, Ontario, Canada, K1H 8L1

Actively Recruiting

14

New Zealand Clinical Research (NZCR)

Auckland, New Zealand, 1010

Completed

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How is the study designed?

Study Type

INTERVENTIONAL

Masking

NONE

Allocation

NA

Model

SINGLE_GROUP

Primary Purpose

TREATMENT

Number of Arms

1

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Safety and Efficacy of Tideglusib in Congenital or Childhood Onset Myotonic Dystrophy | DecenTrialz