From "invisible" to "audible": Features extracted during simple speech tasks classify patient-reported fatigue in multiple sclerosis.
Alyssa Nylander, Nikki Sisodia, Kyra Henderson...
https://pubmed.ncbi.nlm.nih.gov/39690923Actively Recruiting
Age: 18Years +
All Genders
ID07222618
"Selfie" Videos: A Novel, Patient-centered, Comprehensive Approach to Measuring Function in MS
Led by University of California, San Francisco · Updated on 2025-10-31
300
Participants Needed
1
Research Sites
N/A
Total Duration
On this page
Sponsors
U
University of California, San Francisco
Lead Sponsor
G
Genentech, Inc.
Collaborating Sponsor
AI-Summary
What this Trial Is About
Researchers are evaluating a new, affordable way to monitor people with multiple sclerosis (MS) using patient-recorded "selfie" videos. This study aims to see if videos collected remotely on a mobile phone can provide the same walking and speech information as traditional in-person visits. The goal is to create a low-burden, patient-centered method that can be used widely and easily by diverse people with MS. Participants will record five short "selfie" videos at home during baseline, 3 months, 6 months, and 12 months. They will also attend in-person visits at baseline, 6 months, and 12 months for additional data collection. These videos capture daily activities like walking and talking, using the participant's own device such as a smartphone, tablet, or computer without special software. During the study, participants will undergo several assessments including video uploads and in-person evaluations lasting about 15 minutes for video collection and one hour for in-person visits. Researchers will measure how well video data matches standard MS functional tests, the usability of the video method, and its ability to detect subtle changes over time. The study lasts one year and aims to improve remote monitoring for people living with MS.
CONDITIONS
Brief Title
"Selfie" Videos: A Novel, Patient-centered, Comprehensive Approach to Measuring Function in MS
Who Can Participate
Age: 18Years +
All Genders
Eligibility Criteria
You may qualify if you...
- Any patient with MS who is 18 years or older
- Able to consent for themselves or have a surrogate decision maker or legally authorized representative
- EDSS score less than 6.5
- Own a device capable of recording videos such as a smartphone, tablet, or camera
You will not qualify if you...
- Unwillingness to participate in the study
- Unable to consent and without a surrogate decision maker or legally authorized representative
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
1
2
3
Your Study Journey
Screening
Duration - 2 to 4 weeks
Participants are screened for eligibility to participate in the trial.
1 visit (in-person or remote)
Monitoring
Duration - 1 year
Participants use their own devices to record brief 'selfie' videos at home to capture daily function relevant to multiple sclerosis. This approach allows researchers to validate and refine video metrics over time.
Regular video submissions over 1 year
Trial Site Locations
Total: 1 location
1
University of California, San Francisco
San Francisco, California, United States, 94158
Actively Recruiting
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Research Team
K
Kyra Henderson, Study Coordinator
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
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Published Research Related To This Trial
"Self-care selfies": Patient-uploaded videos capture meaningful changes in dexterity over 6 months.
Arpita Gopal, Wilson O Torres, Ilana Winawer...
https://pubmed.ncbi.nlm.nih.gov/37877622