What is this study trying to find out about multiple sclerosis?

This study is examining whether videos recorded by patients using their own devices can effectively capture walking and speech changes in people with multiple sclerosis. Researchers want to see if these remote videos provide the same useful information as in-person visits. The goal is to develop a simple, low-cost way to monitor MS symptoms over time.

Who may be eligible for this multiple sclerosis clinical trial?

Adults aged 18 years or older with a diagnosis of multiple sclerosis may be eligible. Participants should have a disability level below 6.5 on the EDSS scale and own a device capable of recording videos. All genders can participate. Please review eligibility criteria for more details.

Is there any cost to participate in this multiple sclerosis clinical trial?

Study-related care, including all data collection and trial visits, is provided at no cost. Personal expenses such as travel may vary and are not guaranteed to be covered by the study.

Actively Recruiting

Age: 18Years +

All Genders

ID07222618

Selfie Videos A Novel, Patient-centered, Comprehensive Approach to Measuring Function in MS

Led by University of California, San Francisco · Updated on 2025-10-31

300

Participants Needed

Research Sites

N/A

Total Duration

AI-Summary

What this Trial Is About

Researchers are evaluating a new, affordable way to monitor people with multiple sclerosis MS using patient-recorded selfie videos. This study aims to see if videos collected remotely on a mobile phone can provide the same walking and speech information as traditional in-person visits. The goal is to create a low-burden, patient-centered method that can be used widely and easily by diverse people with MS. Participants will record five short selfie videos at home during baseline, 3 months, 6 months, and 12 months. They will also attend in-person visits at baseline, 6 months, and 12 months for additional data collection. These videos capture daily activities like walking and talking, using the participants own device such as a smartphone, tablet, or computer without special software. During the study, participants will undergo several assessments including video uploads and in-person evaluations lasting about 15 minutes for video collection and one hour for in-person visits. Researchers will measure how well video data matches standard MS functional tests, the usability of the video method, and its ability to detect subtle changes over time. The study lasts one year and aims to improve remote monitoring for people living with MS.

CONDITIONS

Brief Title

"Selfie" Videos: A Novel, Patient-centered, Comprehensive Approach to Measuring Function in MS

Who Can Participate

Age: 18Years +

All Genders

Eligibility Criteria

You may qualify if you...

Any patient with MS who is 18 years or older
Able to consent for themselves or have a surrogate decision maker or legally authorized representative
EDSS score less than 6.5
Own a device capable of recording videos such as a smartphone, tablet, or camera

You will not qualify if you...

Unwillingness to participate in the study
Unable to consent and without a surrogate decision maker or legally authorized representative

Research Team

Kyra Henderson, Study Coordinator

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