Actively Recruiting
The Severe Von Willebrand Disease (sVWD) Patient Registry
Led by VWD Connect Foundation · Updated on 2026-04-22
400
Participants Needed
1
Research Sites
520 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
A web-based registry will be created by the sponsor, VWD Connect Foundation (VCF), to collect data on patients with severe Von Willebrand Disease (sVWD). Data will be self-reported by patients and/or collected by registry personnel, as appropriate. The purpose of the sVWD Patient Registry is to create a database of well-characterized (with respect to demographics, medical history, symptoms, laboratory and genetic data, etc.) patients with sVWD for participation in retrospective and prospective research.
CONDITIONS
Official Title
The Severe Von Willebrand Disease (sVWD) Patient Registry
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Anyone meeting the diagnostic classification for von Willebrand disease
- VWF antigen or activity less than 20% regardless of bleeding symptoms, or less than 30% with significant bleeding such as hospitalization, surgery, transfusion, large hemoglobin drop, or serious bleeding events
- Provide informed consent by participant or legal representative
- Willing and able to follow study procedures and provide data
- Reside in the United States
You will not qualify if you...
- Have a clinical diagnosis of acquired Von Willebrand Disease
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
VWD Connect Foundation
Wellington, Florida, United States, 33414
Actively Recruiting
Research Team
C
Christina Morgenthaler, MS, MBA
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
Not the Right Trial for You?
Explore thousands of other clinical trials that might be a better match.
Sign up to get personalized trial recommendations delivered to your inbox.
Already have an account? Log in here