Actively Recruiting
SIOPEN BIOPORTAL, An International Registry Linked to a Virtual Biobank for Patients With Peripheral Neuroblastic Tumours
Led by Institut Curie · Updated on 2025-07-22
600
Participants Needed
38
Research Sites
782 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
The SIOPEN BIOPORTAL is a prospective non-therapeutic multi-centre international study aimed at developing an international Registry linked to a Virtual Biobank for all the patients with peripheral neuroblastic tumor within countries of the SIOPEN network. The overall aim of this study is to provide a GDPR-compliant framework to collect basic clinical annotations, biological and genetic features and information about the location on biospecimens for all the patients with a peripheral neuroblastic tumor including neuroblastoma, ganglioneuroblastoma and ganglioneuroma in the SIOPEN network. This study will support data and sample management and intensify cross-borders data and sample sharing fostering translational and clinical research. The post-hoc hypothesis formulated based on the data generated in this study will be used as statistical basis for future precision medicine programs based on improved biological characterization, patient stratification and therapeutic management.
CONDITIONS
Official Title
SIOPEN BIOPORTAL, An International Registry Linked to a Virtual Biobank for Patients With Peripheral Neuroblastic Tumours
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Patients diagnosed with peripheral neuroblastic tumors including ganglioneuroma, ganglioneuroblastoma, or neuroblastoma
- At initial diagnosis of neuroblastic tumor or at relapse/progression if not yet registered
- Written informed consent from patient or from parents/legal representatives with assent from child, adolescent, or young adult
You will not qualify if you...
- Adult patients diagnosed with olfactory neuroblastoma
- Patients diagnosed with central nervous system neuroblastoma as per WHO classification
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 38 locations
1
Fakultni nemocnice v Motole
Prague, Czechia, 150 06
Actively Recruiting
2
CHU Amiens
Amiens, France, 80054
Actively Recruiting
3
Chu Angers
Angers, France, 49033
Actively Recruiting
4
Hôpital Jean Minjoz
Besançon, France, 25030
Actively Recruiting
5
Hôpital des enfants
Bordeaux, France, 33076
Actively Recruiting
6
Chru Brest
Brest, France, 29609
Actively Recruiting
7
CHU CAEN - Fédération de cancérologie - niveau 21
Caen, France, 14033
Actively Recruiting
8
CHU D'Estaing de CLERMONT FERRAND
Clermont-Ferrand, France, 63003
Actively Recruiting
9
DIJON Hôpital d'enfants
Dijon, France, 21079
Actively Recruiting
10
Chu Grenoble
Grenoble, France, 38045
Actively Recruiting
11
Centre Oscar Lambret
Lille, France, 59020
Actively Recruiting
12
Centre Léon Bérard
Lyon, France, 69373
Actively Recruiting
13
Hôpital d'Enfants de la Timone
Marseille, France, 13385
Actively Recruiting
14
Hôpital Arnaud de Villeneuve
Montpellier, France, 34295
Actively Recruiting
15
Chr Nantes
Nantes, France, 44093
Actively Recruiting
16
CHU NICE
Nice, France, 06202
Actively Recruiting
17
Institut Curie
Paris, France, 750248
Actively Recruiting
18
Hôpital Armand Trousseau
Paris, France, 75571
Actively Recruiting
19
Hôpital Jean Bernard
Poitiers, France, 86021
Not Yet Recruiting
20
Chu Reims
Reims, France, 51092
Actively Recruiting
21
Chu Hopital Sud
Rennes, France, 35056
Actively Recruiting
22
Hôpital Charles NICOLLE
Rouen, France, 76031
Actively Recruiting
23
Hôpital Nord
Saint-Etienne, France, 42055
Not Yet Recruiting
24
Hôpital Hautepierre-CHU Strasbourg
Strasbourg, France, 67098
Actively Recruiting
25
Hôpital des Enfants
Toulouse, France, 70034
Actively Recruiting
26
Hôpital Clocheville
Tours, France, 37044
Not Yet Recruiting
27
CHU NANCY- Hôpital d'Enfants
Vandœuvre-lès-Nancy, France, 54500
Actively Recruiting
28
Institut Gustave Roussy
Villejuif, France, 94800
Actively Recruiting
29
Oslo Universitetssykehus
Oslo, Norway, 0424
Actively Recruiting
30
Kantonsspital Aarau AG
Aarau, Switzerland, 5001
Actively Recruiting
31
Universitäts-Kinderspital beider Basel UKBB
Basel, Switzerland, 4056
Actively Recruiting
32
Ospedale San Giovanni
Bellinzona, Switzerland, 6500
Actively Recruiting
33
Inselspital Bern
Bern, Switzerland, 3010
Actively Recruiting
34
HUG Hôpitaux Universitaires Genève
Geneva, Switzerland, 1205
Actively Recruiting
35
CHUV, Centre hospitalier universitaire vaudois
Lausanne, Switzerland, 1011
Actively Recruiting
36
Kinderspital Zentralschweiz, Luzern
Lucerne, Switzerland, 6000
Actively Recruiting
37
Ostschweizer Kinderspital
Sankt Gallen, Switzerland, 9006
Actively Recruiting
38
Universitäts-Kinderspital Zürich
Zurich, Switzerland, 8091
Actively Recruiting
Research Team
G
Gudrun Schleiermacher, MD,PhD
CONTACT
K
Kamel BOURZAH, MD
CONTACT
How is the study designed?
Study Type
INTERVENTIONAL
Masking
NONE
Allocation
NA
Model
SINGLE_GROUP
Primary Purpose
OTHER
Number of Arms
1
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