Actively Recruiting

Phase 1
Phase 2
Age: 0 - 30Months
All Genders
ID04998396

A Phase 1/2 Open-Label Study of Gene Therapy Using AAV9 Vector Encoding the Human ASPA Gene for Canavan Disease

Led by Aspa Therapeutics · Updated on 2026-04-17

26

Participants Needed

4

Research Sites

312 weeks

Total Duration

On this page

AI-Summary

What this Trial Is About

Researchers are studying BBP-812, an investigational gene therapy using an AAV9-based vector, to evaluate its safety, tolerability, and pharmacodynamic effects in children with Canavan disease. Canavan disease is a very rare, severe, and fatal disorder with no approved treatments. BBP-812 is designed to deliver a gene called ASPA to restore its expression in brain and other cells. Participants will receive a single intravenous infusion of BBP-812. The study includes a dose-finding phase where participants receive either a low or high dose of BBP-812 on Day 0, followed by an expansion phase where participants receive the selected dose from the earlier phase. This gene therapy is given only once during the study. During the trial, participants will be closely monitored through clinical evaluations, urine and brain imaging tests measuring N-acetylaspartate levels, and assessments of motor, cognitive, communication, and adaptive functions up to one year after infusion. Safety is tracked by recording any adverse events. The total study duration includes baseline assessments and follow-ups up to 12 months post-treatment.

CONDITIONS

Brief Title

A Study of AAV9 Gene Therapy in Participants With Canavan Disease (CANaspire Clinical Trial)

Who Can Participate

Age: 0 - 30Months
All Genders

Eligibility Criteria

Eligible

You may qualify if you...

  • Maximum age of 30 months at enrollment
  • Stable health with no acute or chronic hematologic, kidney, liver, immune, or neurologic diseases other than Canavan disease
  • Biochemical, genetic, and clinical diagnosis of Canavan disease including elevated urinary NAA and biallelic ASPA gene mutation
  • Presence of active clinical signs of Canavan disease
  • Up to date on all immunizations per local guidelines
Not Eligible

You will not qualify if you...

  • Positive test for anti-AAV9 antibodies
  • Previous treatment with gene therapy or therapies involving AAV
  • Currently receiving high-dose immunosuppressant therapy
  • Advanced Canavan disease with continuous decerebrate or decorticate posturing
  • Recurrent status epilepticus or seizures not controlled by three or more anti-epileptic medications

AI-Screening

AI-Powered Screening

Complete this quick 3-step screening to check your eligibility

1
2
3
+1

Your Study Journey

Screening

Duration - 2 to 4 weeks

Participants are screened for eligibility to participate in the trial.

Treatment

Duration - Up to 12 months

Participants receive a single intravenous infusion of the gene therapy BBP-812 on Day 0.

1 treatment visit and multiple follow-up visits up to 12 months

Trial Site Locations

Total: 4 locations

1

UCSF Benioff Children's Hospital Oakland

Oakland, California, United States, 94609

Actively Recruiting

2

Ann & Robert H. Lurie Children's Hospital of Chicago

Chicago, Illinois, United States, 60611

Actively Recruiting

3

Massachusetts General Hospital (MGH); Center for Rare Neurological Diseases (CRND)

Boston, Massachusetts, United States, 02114

Actively Recruiting

4

Weill Cornell Medicine; Division of Pediatric Neurology

New York, New York, United States, 10065

Completed

Loading map...

Research Team

A

Alicia Gomez

C

clinicaltrials@aspatx.com

How is the study designed?

Study Type

INTERVENTIONAL

Masking

NONE

Allocation

NON_RANDOMIZED

Model

SEQUENTIAL

Primary Purpose

TREATMENT

Number of Arms

3

Similar Trials

The Myelin Disorders Biorepository Project and Global Leukod...

Leukodystrophy

Actively Recruiting

23 locations

Frequently Asked Questions

Have more questions? Get in touch with our team for quick support

Not the Right Trial for You?

Explore thousands of other clinical trials that might be a better match.
Sign up to get personalized trial recommendations delivered to your inbox.

Already have an account? Log in here